Lack of community services to support carers is piling pressure on emergency care

Lack of community services to support carers is piling pressure on NHS emergency care

Lack of community services to support carers is piling pressure on NHS emergency care

Due to a lack of appropriate support in the community, unpaid carers are reluctantly taking their loved ones to A&E, according to new research published today by Carers UK [1]. The charity’s report comes as the NHS prepares for its annual challenge of increased A&E visits and hospital admissions during the winter months.

Carers identified serious difficulties accessing primary and community support services, with 1 in 5 saying they had no option but to take their loved one to A&E because it was impossible to see a district nurse or a GP out of hours, and 1 in 10 saying they didn’t know where else to go.

The report, Pressure points, found that the majority of carers who have taken their loved one to A&E in the past 12 months believe their admission could have been prevented with more (55%) or higher quality support (50%) for the person they care for, more local support for them as a carer (32%) or access to a district nurse (25%).

A reduction in the provision of local care and support services is contributing to a rise in A&E visits and hospital admissions, as families say they have nowhere else to turn. Indeed, there were over 500,000 more visits to A&E in the first quarter of 2016 than the same period last year [2].

This growing demand on the NHS is forcing many people to be discharged from hospital too early, often without the right support in place at home and without proper consultation with their family. Over half of carers (58%) said that the person they care for had been discharged from hospital too early; with 12% saying their loved one had to be readmitted at a result. Not only is this counterproductive for the health of the person being cared for but it also causes undue stress and anxiety for families and friends who are often unprepared to take on caring responsibilities or coordinate aftercare themselves.

A lack of community health and care support is not only resulting in more people being admitted – or readmitted – to hospital, but it is also leading to many people having to stay in hospital for longer than necessary as they wait for an appropriate care package to be put in place to enable them to go home. What’s more, the cost to the NHS of delays in discharging older patients alone is £820 million a year [3]; with the number of delayed discharges, and therefore costs, continuing to rise [4].

Heléna Herklots, Chief Executive of Carers UK, said:

“The majority of care provided in England is not by doctors, nurses or care workers, but by family and friends. These carers have told us that they aren’t able access the support they need, when they need it, from community health and care services, so they are reluctantly having to turn to A&E.
“What’s more, a lack of consultation, support and information at the point their loved one is discharged from hospital means that many families are taking on a caring role in a crisis and feel unprepared. This isn’t sustainable and is leading to many people being readmitted to hospital shortly after they’ve been discharged, piling more pressure on an already stretched NHS.

“With more and more families picking up caring responsibilities and older people with care needs being encouraged to stay at home for longer, a step-change is urgently needed to boost investment in community services and involve carers in decisions about the support they, and their loved ones, need to manage at home.”

 Carers UK is calling for:

A Carer Friendly NHS programme, introducing a new duty on the NHS to identify carers and promote their health and wellbeing, as well as policies which ensure carers are involved in decision making around hospital admissions and discharges, and the adoption of a Carer Passport scheme

Increased funding for social care, with the Government putting in place a sustainable funding settlement for social care and ring fencing funding for carer breaks

Greater access to social care and health care in the community, including looking to new technologies to facilitate virtual health consultations and access to electronic patient records

Greater support from primary care services to better help carers look after their own health, including annual health checks for carers and free flu jabs

To download your copy of Carers UK’s Pressure points: carers and the NHS report, visit: www.carersuk.org/pressurepoints

Carers UK recognises that deciding to care or continue caring for someone who is coming out of hospital can be very difficult. The charity has published a fact sheet which outlines carers’ rights during the hospital discharge process, the steps that should be followed before the person is discharged from hospital and advice on what to do if things go wrong. The fact sheet, Coming out of hospital, is available at: www.carersuk.org/help-and-advice/practical-support/coming-out-of-hospital

 

[1] Pressure points: carers and the NHS (2016) Carers UK

[2] A&E Attendances & Emergency Admission Statistics, NHS and independent sector organisations in England (July 2016) NHS England

 

Total A&E Attendances
2015 2016 Percentage change
January 1,732,067 1,906,920 10.10%
February 1,654,846 1,870,776 13.05%
March 1,942,967 2,087,553 7.44%
TOTALS 5,329,880 5,865,249 10.04%

 

[3] Discharging older patients from hospital (2016) National Audit Office

[4] Monthly A&E Report (June 2016) NHS England: In June 2016, there were a total of 171,300 delayed days, of which 115,400 were in acute care – an increase of 31,800 from June 2015.

For practical advice and information about caring, contact the Carers UK Adviceline on 0808 808 7777 (10am-4pm, Monday-Friday) or email advice@carersuk.org. Our listening service is available Mondays and Tuesdays, between 9am-7pm.

 

‘Bedroom tax’ ruled unlawful by Court of Appeal

Carers UK

Carers UK

Today, the so-called bedroom tax has been declared discriminatory by Court of Appeal judges, following a legal challenge by grandparents who care for their disabled grandson and a survivor of domestic violence.

The Court of Appeal has granted permission to the Secretary of State to appeal to the Supreme Court against today’s decision that the discrimination caused by the bedroom tax breaks the law.

Paul and Susan Rutherford care for their profoundly disabled 14-year-old grandson and live in a specially adapted home, which has a room for a professional care worker to stay when providing overnight care. This has been deemed as a spare bedroom and, as a result, their housing benefit has been reduced. This is despite there being an exemption for disabled adults in the same situation. Today, the Court of Appeal judges accepted that the bedroom tax unlawfully discriminates against disabled children requiring overnight care, as it does not allow for an additional bedroom for their overnight carer.


Emily Holzhausen, Director of Policy and Public Affairs at Carers UK, gave a statement of evidence in the original case which was referenced in today’s judgment. Ms Holzhausen argued that families who have a clear need for additional bedrooms for a carer should be entitled to an additional room; and that alternatives suggested by the government – such as moving to smaller accommodation or taking in a lodger – are not appropriate for carers.

60,000 carers are currently affected by the bedroom tax.

Heléna Herklots, Chief Executive of Carers UK, said: “This policy is having a catastrophic impact on families, many of whom are already struggling practically, emotionally and financially to care for seriously-ill or disabled loved ones.

“Carers UK has argued that the policy unfairly penalises carers since it was first introduced in April 2013. Our research shows that those carers who are affected by the bedroom tax are being left unable to pay their electricity and heating bills and some families are falling behind on their rent and facing eviction.

“Following today’s ruling, we urge the Government to amend the regulations to protect carers and their families. The policy is clearly having a devastating impact on vulnerable families and the Government cannot allow this to continue.”

Breaking news – Benefit cap victory for carers says Carers UK

Carers UK hails a “significant victory for carers” today as the Government announced it will change the law to exempt all carers in receipt of Carer’s Allowance from the benefit cap.

Carers UK

Carers UK

The announcement was made last night by Lord Freud, Minister of State for the Department of Work and Pensions, in a House of Lords debate on the Welfare Reform & Work Bill.

The announcement came in response to an amendment tabled by Baroness Pitkeathley following a landmark ruling from the High Court on carers affected by the benefit cap. In his Judgment Justice Collins cited Carers UK evidence extensively and ruled that the Government was unlawfully discriminating against disabled people and their carers.

Carers UK has campaigned for changes to the benefit cap rules since the policy was first announced in 2010, highlighting the iniquity of further reducing the incomes of carers who already contribute so much to society.

Heléna Herklots, Chief Executive of Carers UK, said: “This is a significant victory for carers and carers’ rights. By changing the law to exempt carers who receive Carer’s Allowance from the benefit cap, the Government has shown that it recognises both the valuable contribution that carers make to society and that the benefit cap unfairly penalises carers – many of whom are already facing significant financial hardship as a result of their caring role.


“The Government’s response goes one step further than complying with the recent High Court judgment, by exempting all carers on Carer’s Allowance from the policy. It will be welcomed by those carers who are currently affected by the cap, as well as those who were at risk of being affected when the cap is lowered later this year.”

The announcement comes just months ahead the benefit cap being lowered, which would have seen greater numbers of carers impacted by the policy.