700,000 reasons to support Young Carers Awareness Day 2016

This blog post has been corrected and updated

Young Carers Awareness Day is taking place on 28th January this year.

Many of us act as caregivers to children and adults with both acute and chronic medical conditions.

But we often forget that the burden of providing unpaid care falls on the shoulders of young people under the age of 18. Indeed there are 700,000 alone in the UK according to Carers Trust the British leading caregiver organization.

So you can see why we are asking for your support for Young Carers Awareness Day. Indeed they are running a social media campaign so you can spread the news that Young Carers Awareness Day is taking place on 28th Jan by signing up to the Thunderclap here. Please also can you share the Carers Trust poster below.

Young Carers Awareness Day
Young Carers Awareness Day
Young Carers Awareness Day
Young Carers Awareness Day
Young Carers Awareness Day
Young Carers Awareness Day

Alzheimer’s Disease and Dementia Toolkit – some great ideas for caregivers of people with dementia.

Alzheimer’s Disease and Dementia Toolkit – some great ideas for caregivers of people with dementia.

Please like and share this brilliant and informative infographic!

Dementia Toolkit

From Visually.

Xavier University if looking for female caregivers of children with autism for some online research.

Xavier University Autism Research
Xavier University Autism Research

It seems that these days I am writing an introduction to a blog post like this. As I nearly always explain one of the main objectives of this blog is to promote academic research into autism. Not surprising since I sent 20 years in market research and have a son with ASD.

In this case Emily Schreiber , a doctoral student at Xavier University, is conducting some research with female caregivers of children with ASD. The survey is online and lasts around 30 minutes. If toy do complete the study you will be entered into a prize draw for a $50 Walmart voucher!

Of course giving this information is voluntary. No identifying information will be linked to your responses if you have any concerns.

Schreiber shared  ” Are you a female caregiver of a child with autism? We need to hear about your experience!

We are conducting a study about social support experienced by mothers raising a child with an Autism Spectrum Disorder.

Participation in this study will be anonymous and will be of no risk or benefit to you.”

Please click on the following link ato take part in the sudy


If you have any queries Ms Schreiber can be contacted at schreibere@xavier.edu.

Thanks very much for your interest in advance!


National Family Caregivers Month – Read the Presidential Proclamation and share the awareness graphic #CareComesHome

National Family Caregivers Month from the Caregiver Action Network
National Family Caregivers Month from the Caregiver Action Network
As the parent of a child with autism I am delighted to help promote National Family Caregivers Month. The best way, I feel, to do so is to share with you the wonderful proclamation given by the President of the United Sates to mark the month.

It reads

“Each day, courageous individuals step forward to help care for family members in need, their quiet acts of selflessness and sacrifice telling a story of love and devotion. Across our country, parents and children, siblings and spouses, friends and neighbors heroically give of themselves to support those in their lives affected by illness, injury, or disability. During National Family Caregivers Month, we salute the people who play difficult and exhausting roles, and we recommit to lifting up these Americans as they care for their loved ones while protecting their dignity and individuality.

In the United States, more than 60 million caregivers provide invaluable strength and assistance to their family members, and as the number of older Americans rises, so will the number of caregivers. Many of these dedicated people work full time and raise children of their own while also caring for the needs of their loved ones. Caregivers support the independence of their family members and enable them to more fully participate in their communities, and as a Nation, we have an obligation to empower these selfless individuals.

My Administration continues to work to improve many of the resources on which caregivers depend. The Affordable Care Act invested in programs that expand home and community-based services. To lift up a new generation of service members — our 9/11 Generation — we are fighting to ensure those who care for them have access to the support they need, including financial assistance, comprehensive caregiver training, mental health services and counseling, and respite care. Many caregivers rely on workplace flexibility and reasonable accommodations, and this year my Administration held the first-ever White House Summit on Working Families to develop a comprehensive agenda that ensures hard-working Americans do not have to choose between being productive employees and responsible family members. And next year, we will host the White House Conference on Aging, which will focus on the needs of older Americans and those who care for them.

Not only this month, but every month, let us work alongside our Nation’s caregivers and make certain they are able to provide the best possible care for their loved ones for as long as necessary. Together, we recognize those who place service above self, including the women and men looking after our veterans. By offering them the same comfort, social engagement, and stability they bring to others, may we remind them that they are not alone.

NOW, THEREFORE, I, BARACK OBAMA, President of the United States of America, by virtue of the authority vested in me by the Constitution and the laws of the United States, do hereby proclaim November 2014 as National Family Caregivers Month. I encourage all Americans to pay tribute to those who provide for the health and well-being of their family members, friends, and neighbors.

IN WITNESS WHEREOF, I have hereunto set my hand this thirty-first day of October, in the year of our Lord two thousand fourteen, and of the Independence of the United States of America the two hundred and thirty-ninth.


As you can see we have used a graphic from the great the National Alliance for Caregiving. You can check out their great site here It would be great if you could share with your freinds and family to raise the profile of National Family Caregivers Month. They also ask if you could use this hashtag in your tweets and promotions #CareComesHome.

Carers Week 2014 – please sign the pledge to show your support on the Carers Quest Wall

Carers Week 2014
Carers Week 2014
It was Carers Week 2009 when I it really hit me that being a caregiver was not something which happened to other people but was something which was going to happen to me.

I have seen friends both of mime and my parents turn into caregivers. Indeed one of my first work colleagues after leaving university had a wife who had been diagnosed with multiple sclerosis and he was her primary carer. He fought hard to twelve tough years. For many of us it is quite literally a world turned upside down!

In fact I was helping create video of that year’s Carers Week demonstration outside Downing Street in London , the Official Residence of the UK’s Prime Minister. I received a phone call from my wife saying that a lady from the local Early Years Centre had just paid a visit. The lady was of the view that our son did have a issue. While she could not , of course, diagnose it would possibly be autism. As readers of this blog will know a few months later John was formally diagnosed with ASD.

So as you can imagine I strongly support other caregivers. Indeed compared to most my wife and I have it quite easy. But this is not the case for others.

To show your support for caregivers it would be great if you could do two things for me:-

a) Carers UK who are organising the event are organising a Carers Quest Pledge on their web site. It would be great if you could sign here.

b) If you are a caregiver using the comments section below please share how many hours each day or week you are involved in providing care for another person. Many thanks in advance.