Molehill Mountain – an app to help autistic people with anxiety

Molehill Mountain 430x275

Available on the Apple App Store today, Molehill Mountain is the first evidence-led smartphone app aiming to help autistic adults understand and self-manage their own anxiety. The app has been developed by UK research charity Autistica and researchers at King’s College London with input from autistic people.

Molehill Mountain will launch as part of a digital learning package on anxiety and autism which includes an email course and supporting web content.

Research studies show that 40-50% of autistic people suffer with anxiety disorders – vastly higher rates than in non-autistic people. Helping people understand the causes of anxiety and the reasons for their symptoms is key to managing it better.

Molehill Mountain is based on Cognitive Behaviour Therapy (CBT) approaches adapted for autistic people. It builds on the latest research into anxiety in autism and puts these techniques into the hands of autistic adults across the UK.

The app originated from a hackathon held at Deutsche Bank when Autistica was one of its Charities of the Year in 2016-17. More than 150 of the bank’s technology and design experts competed to develop a prototype, with all coding created donated to Autistica. It has also received funding from the Maudsley Charity the ‘Worshipful Company of Information Technologists’ Charity and The Pixel Fund.

Jon Spiers, Chief Executive at Autistica, explains: ‘Too often autistic people receive inappropriate anxiety support and sometimes they’re unable to access any support at all. We wanted to offer something practical that can be used whenever and wherever it’s needed. Many autistic people have a real affinity with tech and our autistic testers and developers told us that personalisation was important, so an app seemed like the perfect solution.’

Molehill Mountain gets users to track their worries and how they’re feeling through a quick dailycheck-in. The user is prompted to open the app to play Molehill Mountain, an activity designed to identify and capture any worries. Completing the activity unlocks a daily tip about anxiety and autism. The user is then asked three simple questions about their day and given the option to add more context to a daily diary. At each check-in, the user tracks their progress up Molehill Mountain and reviews their stats, tips and diary entries through a dashboard. The app delivers its programme over 14 check-ins but can be used for longer. Users can also share their progress with a trusted supporter.

Despite high potential and interest for clinical mental health apps, research suggests that many fail because of low engagement levels. Users report that these apps are often unhelpful, don’t addresstheir problems or feel insecure or untrustworthy. Autistica and King’s College London worked closely with autistic people and developers to ensure that Molehill Mountain is easy to use, engaging, relevant and secure.

As someone with lived experience of anxiety, Amy helped Autistica to develop the app. She says: ‘I enjoyed getting involved – it is great to have my needs heard. I am pleased that research is being used to create a practical tool to help people like me cope better in everyday life.’

The team are taking an iterative approach to developing Molehill Mountain. They will continue to test and learn with users of the app to plan new features and other improvements. Professor Emily Simonoff from the Institute of Psychiatry, Psychology & Neuroscience at King’s College London worked on the anxiety research that formed the basis of the app: ‘We based the content of Molehill Mountain on adapted cognitive-behavioural therapy (CBT) principles, as there is good evidence that CBT can help to reduce anxiety symptoms in people with autism. It is not clear yet how effective Molehill Mountain will be for helping people to manage their anxiety, but we will be following a group of users to see how they get on.’

Discover – find out about this new autism research network!




Discover the  Autism Research Network

Discover the Autism Research Network




Leading autism research charity Autistica calling on autistic people and their families to join a new national autism research network. With 1 in 100 people estimated to be autistic in the UK, the network aims to radically improve scientific understanding of challenges in autism, such as language and communication, mental and physical health and epilepsy.

Called Discover, the autism research network will link together the UK’s top research universities with individuals interested in research, such as autism researchers, families and autistic people. Charities, hospitals and care providers will also be able to join and participate in autism science.

Discover will involve our whole community for the first time to collaborate and drive a revolution in autism research. We want to bring experts together to develop a national approach to autism research, increase joint working within the research community and ensure the UK remains a world leader in autism research. But most importantly, Discover will give autistic people and their families the chance to have their say and become involved in life-changing research.“ according to Jon Spiers the CEO of Autistica!

Autistica, together with its research partners, aims to recruit 20,000 autistic people and families to join Discover by 2021, potentially participating in a raft of research projects planned over the next four years.

These research projects are designed to answer the key questions autistic people and their families have prioritised including autism-specific mental health treatments, tools for better communication, and improving autistic employment and social care.  You can see the full strategy and list of community priorities here: https://autistica.org.uk/our-research/research-strategy




 utistic people of all ages and abilities, together with their families or carers, are invited to join Discover as soon as possible by visiting https://autistica.org.uk/get-involved/take-part-in-research. Researchers can sign up at: https://autistica.org.uk/our-research/discover-network.

“Through the Discover research network, we will deliver longer, happier, healthier lives for autistic people and their family members together.  Most research doesn’t happen in a laboratory. It could be as simple as filling in a survey or joining a focus group and there is a lot of research that can be done from the comfort of your own home. Research is the only way to change the future for autistic people and their families and we need everyone’s help to give them the answers they desperately need.” said Dr James Cusack, Director of Science at Autistica

 

World Autism Awareness Day Find out how to make a difference here……….. #helpfindanswers




World Autism Awareness Day

World Autism Awareness Day




 

Please take part in Autistica’s  campaign for World Autism Awareness Day on 2nd April! We are asking people to #helpfindanswers on World Autism Awareness Day. They are asking as many people as possible to sign up to our Thunderclap to pledge their support and share our message. If we reach our target of 250 supporters by 1st of April, our message will be shared across social media.

Please could you sign up to our Thunderclap campaign and share via your social media channels? https://www.thunderclap.it/projects/54514-world-autism-awareness-day?locale=en

They are quite shy of their target so far, so anything you could do to promote would be much appreciated.




#MegaMinds – How you can help support life changing autism research!




MegaMinds - raising Money for Autism Research #MegaMinds

MegaMinds – raising Money for Autism Research #MegaMinds




A couple of weeks ago I was contacted by Autistica a UK based charity which raises money for Autism research. As some of you know I rode my bike from London to Brighton last year on their behalf.

They have developed a new fund-raising tool – a quiz called #MegaMinds.

Tonight the launch event in London. I’ve been asked to drop in and find out a bit more.

So tomorrow I’ll send over a bit more feedback but in the meantime I’m sharing with you the brochure for MegaMinds. You can have a look at their web site which gives a bit more information on Autistica and MegaMinds here.

MegaMinds - raising Money for Autism Research #MegaMinds

MegaMinds – raising Money for Autism Research #MegaMinds




MegaMinds - raising Money for Autism Research #MegaMinds

MegaMinds – raising Money for Autism Research #MegaMinds

MegaMinds - raising Money for Autism Research #MegaMinds

MegaMinds – raising Money for Autism Research #MegaMinds

MegaMinds - raising Money for Autism Research #MegaMinds

MegaMinds – raising Money for Autism Research #MegaMinds

MegaMinds - raising Money for Autism Research #MegaMinds

MegaMinds – raising Money for Autism Research #MegaMinds

Autism and mental health – A guide to looking after your mind


Autism and mental health A guide to looking after your mind

Autism and mental health
A guide to looking after your mind

Autism and mental health A guide to looking after your mind





Yesterday we shared a leaflet from Autistica on the subject of autism and epilepsy.

Today we are delighted to share this very important leaflet on autism and mental health entitled “Autism and mental health A guide to looking after your mind”. This is of great importance to the autism community so please share!

To sign up for more leaflets from Autistica please click here.

Autism and mental health A guide to looking after your mind

Autism and mental health
A guide to looking after your mind




Autism and mental health A guide to looking after your mind

Autism and mental health
A guide to looking after your mind