March 8th is International Women’s Day. Greeting to all those celebrating today from all of us at PatientTalk.Org
When I started working in healthcare one thing I had no idea about was how many people in the MS community tattoos had related to multiple sclerosis.
But the arrival of social media soon relieved me of my ignorance. Indeed in the various multiple sclerosis groups I have worked on it is pretty common for people to want to share their MS body art. Have a look at https://www.facebook.com/MultipleSclerosisTalk to see what I mean.
Medical and healthcare related tattoo seem to be popular for two reasons. For people with diabetes it is a great tool to let ambulance people, nurses and doctors know about their condition in case of diabetes related coma or a car accident.
Within the multiple sclerosis community on the other hand tattoo are used as a brilliant way of increasing awareness of MS and, in some cases, for showing support for a loved one.
PatientTalk.Org thought it would be a good idea to provide a blog post where our readers could share their MS tattoos
So please feel free to post a picture of your multiple sclerosis tattoos in the comments section of this blog. If this proves a problem you can email your picture to us at email@example.com and we will post them on your behalf.
Thanks very much in advance.
“Sugar tax may be necessary, England’s chief medical officer says” – you can read the whole article here http://www.bbc.co.uk/news/health-26442420 on the BBC’s web site.
It seems that not just in England these kinds of “health taxes” and bans have become increasingly popular with politicians, health activists and medical professionals. Who , by and large, probably making enough money not to be affected by such price hikes. But that is another matter.
So I was wondering how much support a tax on sugar would be with our readers. I’ve put together a short poll. and it would be really great if you could take part!
Feel free to use the comments box below to explain in a little more detail the reasons for your vote.
Thanks very much in advance!
Years ago when I started getting into both healthcare issues and social media I discovered lots of people had or were planning on having a tattoo related to a health or other condition.
There were two main reasons for this. In the case of say people with diabetes it was a useful tool to let paramedics or other healthcare professionals know about the condition in case of an accident or a diabetes induced coma.
Within the autism community on the other hand tattoo are used as a great way of raising awareness of ASD and, of course, for showing support for a loved one.
So we thought it would be great to provide a forum where our readers could share their autism tattoos and other related ASD body art.
So please feel free to post a picture of you tattoo in the comments section of this blog. If this proves a problem you can email your picture to us at firstname.lastname@example.org and we will post them on your behalf.
Thanks very much in advance
Shelley shares “My son is four years old and has ASD. I got this tattoo without color so after it’s fully healed my son and daughter can color the puzzle piece in with four colors. My son still doesn’t talk but has started using sign language to ask please, more, thank you and much more. I know I have only known he has ASD for a short while but no matter what I will always love him for who he is ASD and all.”
Terri shares ” “Here is my tattoo I got for my 7 yr old ASD son, Damien James. He is my pride and joy. I love him to the moon and back. I chose this tattoo BC I love him, ASD and all. I replaced the O with a blue puzzle piece. Its my favorite tattoo right now. I have other tattoos in the works, all Autism themed for my boy and to spread awareness and ASD love. People see my tattoos and ask questions and this one makes for great convos to explain what autism is to those who don’t understand it. My son is different, not less!!!”
Stephanie shares “My son is four years old and has ASD. I got this tattoo without color so after it’s fully healed my son and daughter can color the puzzle piece in with four colors. My son still doesn’t talk but has started using sign language to ask please, more, thank you and much more. I know I have only known he has ASD for a short while but no matter what I will always love him for who he is ASD and all.”
Many years ago I shared an office with a guy who suffered from Diverticulitis. Most of the time he was fine but during a flare up he would often, in mid conversation, leave our office and make a run for the bathroom. He could be there for, literally, hours.
He mentioned after the first episode that he had Diverticulitis and it being England no one enquired further.
It was only later when I started working in the healthcare branch of the market research industry that I found out more and realised how difficult life must have been for Edward.
So what actually is Diverticulitis?
Well actually it is a bit of a long story. As you may know there are bulges which may appear in the colon (large intestine) which are called Diverticula. These are very common and are normally related to the body’s aging process. Indeed they are also associated with the passing of hard stools. When you have Diverticula and no other symptoms it is called diverticulosis.
Diverticulitis is when symptoms do occur – which happens in around 25% of cases of people with Diverticula. These can include:-
Obviously if you have any concerns about Diverticulitis we would strongly suggest you contact a healthcare professional as soon as possible. In fact the sooner Diverticulitis is treated then the lower the risk of any complications developing.
Treatments are pretty much as you might expect. A high fibre diet is recommended. This would include plenty of fruit and vegetables as well as whole grains and pulses such as lentils and beans. But go easy to start with on such a diet as you run an increased risk of flatulence. If you do develop flatulence (or high levels of gas in the bowels) then this blog on prevention may be of interest and value – http://patienttalk.org/flatulence-three-natural-ways-of-fighting-flatulence/.
Antibiotics are valuable as a way of eliminating infection from Diverticulitis. In some very rare occasions surgery may be employed if symptoms are serious enough.
As regular readers of this blog will know, one of the aims of these kinds of posts is to get our readers to share their experiences of different medical conditions. So we were wondering if people who have had or still have Diverticulitis would be interested in sharing their stories with our readers. It would be great if you would use the comments box below to do so.
It would be useful, but not essential, if you could think in terms of the following questions:-
1) What were your first symptoms of Diverticulitis?
2) What impact did it have on your lifestyle?
3) How was the Diverticulitis treated and how successful were the treatments?
4) What one piece of advice would you give to somebody who has just been diagnosed with Diverticulitis?
We really look forward to reading your comments. Many thanks in advance.
I know that your many of us in the autism community this can be a very controversial question.
What actually causes ASD?
So far the jury is “out” in terms of an official explanation but that does not stop a number of different theories being shared.
Obviously this is a “hot button” subject for many people but we thought a discussion could prove of value. Because of this we would ask you to remain both polite and charitable if you join in the discussion about the causes of autism in the comments box below.
In the first instance it would be great if you could take part in our poll on the causes of autism below, Secondly it would be great if you could share more using the comments box below.
We are very keen to hear you opinions.
Endometriosis UK share “Women and young girls are waiting an average of two years before consulting their GP about difficult or painful periods. The Diagnosis Survey by Endometriosis UK found that women and young girls do not realise that what they are suffering may not be normal and that they should consult a healthcare professional.
Painful, heavy, difficult or irregular periods can be a sign of an undiagnosed medical condition, including endometriosis. Young women – particularly – need to be encouraged to seek help at an early stage. If they do so they may significantly increase their ability to conceive later in life and will not necessarily have to suffer symptoms for years for which they could have help. Average diagnosis times for endometriosis still sit at around seven years with 50% of women diagnosed reporting their first symptoms in their teenage years.
That’s why we say in our new campaign that: It’s ok to talk. Period.
Whilst many women experience some pain or discomfort during their period, specifically in the early years, no-one should be experiencing pain that lasts for more than two days. If a period affects everyday activities or cannot be controlled by normal over-the-counter pain medication, then women are encouraged to seek help. Painful periods, especially so if accompanied by other symptoms, may need additional treatment. Early diagnosis has been shown to improve health outcomes for many conditions.
Just talking about what is normal can be helpful. Many women have learned about periods from their mothers, sisters or aunts, but as some conditions (e.g. endometriosis) have a genetic factor, then symptoms can become normalised. To help start the conversation, Endometriosis UK is setting up a range of activities to encourage women to talk: online, by telephone and face-to-face.
Helen North, Chief Executive of Endometriosis UK, says: “Women must be more aware of the devastating effects that painful periods can have upon them at an earlier stage. Our recent research indicating delays in both seeking help and diagnosis times for endometriosis, suggests that both women and healthcare professionals need to be much more aware that endometriosis is a possibility. With over 1.5 million women suffering with endometriosis in the UK, it is almost scandalous that they wait an average of seven years for diagnosis. Associated with delayed diagnosis, the costs to the NHS are thought to be as much as £8 billion. Women simply must be encouraged to seek help as soon as they can.”
Leaflets and information to give more information about endometriosis and the symptoms to look out for can be found on the Endometriosis UK website – www.endometriosis-uk.org – with a Pain and Symptom Diary available to download, plus many other useful leaflets. There is also a telephone helpline where people can phone in and discuss their symptoms – see the website for opening times.
Activities to raise awareness about endometriosis continue after Awareness Week, with an event in the Scottish Parliament on Wednesday 12th March – entitled: ‘Endometriosis: the hidden threat to women’s health’ – and on 13th March in Kensington Gardens, London, in support of the global campaign: ‘Million Woman March for Endometriosis.’
For full information on all the activities and more about Endometriosis, visit www.endometriosis-uk.org. ”
For my wife and I it was regression.
For the first two years of his life our son John was fairly typical of his age group. A bit slower in speech but not by much.
Just before his second birthday however things began to change. His ability to speak and the development of number of other social functions such as smiling not just halted but went backwards. a year later he was diagnosed with autism.
Since then I have always been interested in early signs of autism within the autism community.
So we have decided to run a short poll to find out a bit more about your experiences. It would be great if you could use the comments box below to share in a bit more detail about the early signs of autism or ASD in your child.
Many thanks in advance.
Thanks for dropping by.
This week 3rd-9th March 2014 is Multiple Sclerosis Awareness Week.
We have produce the graphic below which we hope you will share to promote the week with family and friends.
To find out a bit more about our previous blog posts on multiple sclerosis please have a look at http://patienttalk.org/tag/multiple-sclerosis/
Thanks very much in advance
We are delighted to showcase Nick Hayden’s blog about Crohn’s Disease in this latest guest post. He tells about www.juicing4crohns.wordpress.com and he use of jouice as a treatment for his gastrointestinal disorder.
Nick shares “Hi! My name is Nick Hayden and I am a 3rd grade teacher who “had” Crohn’s Disease for 5 years. The blog that I have created describes all that I have done to be cured from this ailment and the steps that I took. My goal is to pass on this information to help others get off of medication completely and lead a better life. Please take a look at my information contained in the blog and pass it to friends or family that need a way out. I have found that way and it works!! Thank you!”
You can read his blog here www.juicing4crohns.wordpress.com
If you have any questions about the blog for Nick please use the comments box below.