National Eye Health Week – Is one eye covering up the problem? – Find out more about the symptoms of Wet AMD


Wet AMD

Wet AMD

Wet age-related macular degeneration (wet AMD) is the leading cause of blindness in the UK and mainly affects the over 65s.  The number of people at risk of developing wet AMD is expected to grow significantly as the population ages.

A new campaign, supported by Leicester’s Hospitals and Leicestershire sight loss charity , Vista aims to raise awareness of wet AMD and its signs and symptoms among older people in the Leicester area, encouraging those over 65 to see their optician if they have any concerns.

The campaign, running during National Eye Health Week (NEHW), will ask ‘Is one eye covering up the problem?’ to highligh how wet AMD can affect one or both eyes and sometimes the healthier eye can compensate for any loss of sight.People at risk are encouraged to check their vision in both eyes by covering up one eye and looking straight ahead.


Symptoms of wet AMD include; difficulty in reading small print even with reading glasses; straight lines appearing wavy or distorted; or blurred vision.  It affects the part of the eye which sees fine detail (central vision), so can make everyday tasks such as driving, cooking, reading and seeing faces very difficult.  The risk of developing the disease increases with age, having a family history of wet AMD and smoking.

Theo Empeslidis, a consultant ophthalmologist based at Leicester Royal Infirmary, explains the importance of this campaign:  “Wet AMD is an aggressive form of macular degeneration and, if left untreated, can cause severe vision loss within weeks.  This campaign is all about asking people over the age of 65 to cover up one eye at a time and look straight ahead and check their sight.

“Difficulties reading or blurred vision are not necessarily signs of old age. If you have any concerns, make an appointment with an optician and ask about macular degeneration. The earlier we’re able to diagnose and treat wet AMD, the more sight we’re likely to save.” The new research also shows only 14 per cent of people who were aware of wet AMD were able to correctly identify at least one sign or symptom of the condition.

Paul Bott, Chief Executive of Vista adds: “These results highlight the worrying fact that the majority of people in Leicestershire who are at high risk of developing wet AMD have never heard of the disease and can’t identify the main signs and symptoms.

“Wet AMD is the biggest cause of preventable sight loss in this country and, as we get older, our risk of developing the condition increases greatly.  These days we’re all living longer so it’s in everybody’s interests to take five minutes to find out a bit more about this campaign because it could make all the difference to saving your sight.  Pick up a leaflet, call our helpline or speak to your optician if you have any concerns.”

Further information about wet AMD is available at www.vistablind.org.uk

What has been the most successful treatment or therapy for Multiple Sclerosis you have used so far? Please take our poll and join in the discussion!


Multiple sclerosis awareness

Multiple sclerosis awareness

One of the roles of this blog is to help people recently diagnosed with multiple sclerosis (MS) to negotiate their treatment journey.

We do this by providing a forum for discussions lead by People with Multiple Sclerosis for People with Multiple Sclerosis.

Today we want to turn our attention to negotiate to treatments for multiple sclerosis. While we know that everyone with MS is different an will respond differently to MS therapies we are very interested in your response to the following question. “What has been the most successful treatment or therapy for Multiple Sclerosis you have used so far? ”

To help us with this information it would be brilliant if you could share your experience in the poll below. If we have not covered your prefered therapy please tell us more in the comments box below.

It would be great if you could share the story of your MS treatments in the comments section below. Our readers would be very interested in all aspects of your story. What worked for you and what didn’t?

Many thanks in advance!


Study warns swift action needed to curb exponential climb in Ebola outbreak – says New England Journal of Medicine


Ebola Outbreak News

Ebola Outbreak News

Like many of my readers I have been following the recent Ebola outbreak with some concern. I was send the following information this morning which I thought would be useful to share.

Unless Ebola control measures in West Africa are enhanced quickly, experts from the World Health Organization (WHO) and Imperial College, London, predict numbers will continue to climb exponentially, and more than 20,000 people will have been infected by early November, according to a new article in the New England Journal of Medicine released six months after WHO was first notified of the outbreak in West Africa.

In the article, public health epidemiologists and statisticians reviewed data since the beginning of the outbreak in December 2013 to determine the scale of the epidemic, better understand the spread of the disease, and what it will take to reverse the trend of infections.

Scale of epidemic

Although WHO was first notified of the outbreak on 23 March 2014, investigations retroactively revealed the outbreak started in December 2013. Between 30 December 2013 and 14 September 2014, a total of 4507 cases were reported to WHO.


The data in the study help clarify some details of who is most affected by this outbreak. For example, there have been mixed reports on whether women might be harder hit because they are more likely to care for sick, or whether it would be men who might be more likely to bury the highly-infectious dead bodies.

“This study gave us some real insight into how this outbreak was working, for example, we learned there is no significant difference among the different countries in the total numbers of male and female case patients,” says Dr Christopher Dye, Director of Strategy for WHO, and co-author of the study. “There may be differences in some communities, but when we actually looked at all the data combined, we saw it was really almost split 50-50.”

The extensive review of data also allowed for a closer look at case fatality rate.

“Assessing the case fatality rate during this epidemic is complicated by incomplete information on the clinical outcomes of many cases, both detected and undetected,” says Dye. “This analysis shows that by 14 September, a total of 70.8% of patients with definitive outcomes have died. This rate was consistent among Guinea, Liberia and Sierra Leone.”

But the case fatality rate was lower when only hospitalized patients were considered, supporting evidence that getting patients to good, supportive health care quickly makes a difference.

Spread of infection

The examination of the data also showed the spread more clearly. In late December, the first cases were reported in the forest areas of Guinea. By March, when the government sounded the alarm to WHO, cases had already spread from the forest area to the capital of Conakry. In May, the focus of the outbreak in Guinea expanded strongly to Sierra Leone and in June it really took hold in Liberia. From July onward, there were sharp increases in case numbers in all three countries.

Projections

Although the current epidemic in West Africa is unprecedented in scale, the clinical course of infection and the transmissibility of the virus are similar to those in previous Ebola outbreaks.
“We infer that the present epidemic is exceptionally large, not primarily because of biologic characteristics of the virus, but in part because of the attributes of the affected populations, the condition of the health systems, and because control efforts have been insufficient to halt the spread of infection,” says Dye.

There are challenges in this region that exacerbate the struggles to contain the virus quickly. Most importantly the health systems in all three countries were shattered after years of conflict and there was a significant shortage of health workers, leaving the system weaker than in other countries with Ebola outbreaks. In addition, certain characteristics of the population may have led to the rapid spread of the disease, for example, the populations of Guinea, Liberia, and Sierra Leone are highly interconnected, with extensive cross-border traffic at the epicentre and relatively easy connections by road between rural towns and villages and the densely populated capital cities.
“The large intermixing population has facilitated the spread of infection, but a large outbreak was not inevitable,” says Professor Christl Donnelly, Professor of Statistical Epidemiology, Imperial College and the MRC Centre for Outbreak Analysis and Modelling. “In Nigeria, for example, where health systems are stronger, the number of cases has so far been limited, despite the introduction of infection into the large cities of Lagos and Port Harcourt.“

The critical determinant of outbreak size appears to be the speed of implementation of rigorous control measures.

“Forward projections suggest that unless control measures – including improvements in contract tracing, adequate case isolation, increased quality of care and capacity for clinical management, greater community engagement, and support from international partners – improve quickly, these three countries will soon be reporting thousands of cases and deaths each week,” says Dye.
Experimental therapeutics and vaccines offer promise for the future, but are unlikely to be available in the quantities needed to make a substantial difference in control efforts for many months, even if they are proved to be safe and effective.

The risk of continued expansion of the Ebola outbreak is real. This study provides the evidence needed for an urgent wakeup call requiring intensive scaling up of control measures while working towards rapid development and deployment of new medicines and vaccines.

How to boost your mood naturally this Autumn (or Fall) – Check out this great WebTV show!


Happy and Healthy - boost your mood!

Happy and Healthy – boost your mood!

Watch our live and interactive web TV show where Dr Hilary Jones and health writer Sally Brown talk about the causes of low moods and what you can do to improve your frame of mind

Show date: Tuesday 23rd September
Show time: 3pm

We all suffer bad moods from time to time, but do you often feel your bad moods are more common than good ones? And as summer ends and autumn sets in, do you worry your moods are about to get even lower?

New research released by Healthspan has looked into some of the main reasons women suffer from bad moods, with things like a lack of money, feeling overweight, bad weather and even our partners the cause of our mood swings.

But could there be more to our bad moods than our circumstances? Could lifestyle factors, such as our diet, our sleeping patterns and even conditions such as SAD be to blame?

Log on to our live and interactive web TV show where Dr Hilary Jones and health writer Sally Brown answer all your questions and talk about some of the most common reasons for low moods as well as giving solutions for those of us who want some practical advice on how to lift our moods.


Williams Syndrome – Learn about the condition and share this brilliant awareness butterfly


We covered Williams Syndrome in some detail in a blog post earlier this year. If you want to find out more about the signs, symptoms and treatment of Williams syndrome please go here.

As well it would be brilliant if you could share Donnee Spencers brilliant awareness butterfly to show your support for everyone with Williams Syndrome!

Many thanks in advance.

Williams Syndrome

Williams Syndrome


Autism and Challenging Behaviour Part 12. “The effect of autism on patients and the struggle the parents may face raising children with autism”


Autism Awareness Butterfly

Autism Awareness Butterfly

As you might know as part of our ongoing autism awareness campaign we run a Facebook Page called AutismTalk. The aim of the page is , in part, to provide people in the ASD community with a forum to share stories and ideas.

A few days ago one of our members asked a fascinating question. “Hi I’m doing a speech on autism I was just wondering if by chance u can enlighten me on the effect of autism to patients and the struggle the parents may face raising children with autism”. With over forty responses we felt it would be valuable to with our readers as aprt of our Autism and Challenging Behaviour series of blog posts.

Please feel free to use the comments section below to give any advice you have have about the challenges others face and also do share what you feel to be your big issues with regard to autism.

Maria mention one of the major concerns which I do share “One thing that affects a parent is the world around my boy not understanding him what if I died what would happen to him who would understand him like I do.”


On the other hand Elena commented “The struggle we face with my 6 year old boy even though he’s verbal and on high end of spectrum is dealing with the behavior prob , it impacts the whole family and adds additional stress to siblings. The other stress is them doing homework when challenges at school already exist. Not wanting to go to school and running towards traffic. All we can do as parents is pull all resources available do the best we can to see our kids succeed as adults and being independent but at times depending on situation makes it difficult to feel we are doing things right.”

“I think my biggest struggle of autism is not being able to understand my son because he has a severe speech delay. Also his over sensory when we are out and the world becomes over stimulating and it’s to much for him and he doesn’t listen at at. Dealing with that on a daily basis wares thin on patience quick.” was Roxy’s thinking.

Jessica shared “My biggest struggle with raising my beautiful daughter who has autism odd pica (eats non food items) anxiety and possible dyslexia is not being able to take away her sadness when she crys and says mummy why me dosnt god love me why me I tell her that God spent a little more time making her because she has added extras it brakes my heart not being able to do any more then hold her tell her it will be ok when deep down I don’t know if it’s going to be ok…could also be when trying to explain to other people why my daughter has melt downs that are sometimes out of my control and I.can’t stop feel free to inbox me I have so much to say”

“My daughter is 18. It has been hardest watching her struggle with social skills and anxiety. It makes our family feel alone to see everyone else’s kids growing up with friends and cousins and her alone. But she has amazing gifts and is taking college classes. Our family will move to Florida from new England so she can pursue her dream of working for Disney. Just because she has autism doesn’t mean she can’t have a good life. I’d sacrifice a lot to make that happen.” said Lisa.

Juliet’s view was shared by a lot of our other readers “The biggest challenge for me is trying to keep my cool with people who don’t understand my boys. My youngest is diagnosed autistic, my middle one has sensory integration issues and exhibits symptoms of ADHD and PDA, and my eldest has had serious struggles with social interaction and learning not to take everything literally. Only my youngest suffered serious speech delay, and he is the only one with a diagnosis. They are all very bright and do well when they’re interested. However, their progress at school is directly related to the quality of the teacher, and it is so frustrating. Each year, with each child, we have had to wait to discover whether the teachers will love them and get a kick out of getting the best out of them, or write them off as difficult and badly behaved, and complain at year-end about their lack of progress. My boys are my boys – smart, funny, affectionate, sweet-natured and transparent – but their brains are oddly disconnected from their sense of themselves: they won’t notice that they’re hungry or thirsty, or need sleep or the toilet, or are annoying someone else, or humming or tapping or twitching or fidgeting or repeating the same sentence over and over… But because they are bright and often very sensitive to outside stimulus, people cannot seem to believe that they can be so unaware of themselves, especially as they tend to be very self-conscious in certain situations – like my youngest loves to sing, and will sing all day, wherever he is, and regardless of whether it is appropriate. But if he notices that people are listening, then he is completely overwhelmed and cannot continue, so he won’t consider joining a choir. People usually love him, given time to get to know him, but I am sick of people judging him initially by their own sad, narrow and twisted standards, of always being the reasonable one who sympathises with their difficulties when I want to slap them for being too lazy to try to understand his (or his brothers’) struggles. Pm me if it would be helpful.”

Zara mentioned routine “My biggest struggle is when something changes in routine, it’s life you can’t control the world. But when something changes or disrupts what my son is doing, my anxiety shoots up as i know hes going to get very anxious or result in a meltdown. You lit see the change coming and you like ow god and look straight to see if he has noticed.
What makes it worse, is others looking & trying to get involved. Yes thank you for wanting to help, but i am lit screaming inside please leave him alone more fuss makes him worse. My son is 5, he has Autism, Global DD & SPD. I am qualified support worker for adults with Autism & LD and Teaching Assistant for children with ASD. If you need to know anything inbox me, as i’ve met alot of families and situations. Good luck! X”

“People expecting me to place my daughter in a residential care facility. It isn’t what she wants or what I want so sometimes I wish people would back off with their opinions” angers Vanessa.

For people like Kerri education is a major concern “A lot of parents do not know that the school system has programs to help in and out of school, even during the summer. They can come to your home and help the entire family. My son is in the spectrum and has been in school since he was 3. We have learned of widgets and weighted vests and blankets to help keep them calm in environments where it is hard to keep their stress levels down. He carried a Woody doll ( from Toy Story) for years. Now he carries a car in his pocket. It’s the little things that can keep them calm. They also have stones with encouragement words on them, but in order for these to work they must have time enough to understand the purpose in making them a reminder to stay calm. Videos and apps are a great way to teach them emotions and social cues. Now my man is in the second grade although he is still in speech and occupational therapy he is an A B student in a mainstream class. They are very capable to learn and cope with situations if the parent is able to stay consistent. As my son has had trouble with being around a big group of people with lots of noise he can now handle being social without it overwhelming him. I wish I could help more parents to deal with this because I have seen what can be done with my own child. You must never let what others think bother you. Because then your child has a hard time coping if his parent or guardian can’t handle it, they think they can’t either. They feed off the feelings of others around them. Staying positive is the best way to make your child understand that these things are normal even though they see situations as fearful and sometimes painful. My son would also look at me when he felt overwhelmed and I would simply give him a thumbs up or tell him simply that it’s ok. By me not making a big deal out of the noise or tons of people around us he eventually learned that this is normal and he can handle it. So pay attention to your child and see the expressions on their faces as most do not have any other way of communicating. Encouragement and keeping yourself calm is key. I have talked with parents and seen the way that others treat my son and I can tell you to never allow them to use this as a crutch in life. We all have autism traits as you think about your “pet peavs” you must learn to cope with them because otherwise they would control your life. No one needs any pity for the way they are in any aspect. Temper tantrums are one way children communicate whether autistic or not. They must be handled in the same manner. I have seen parents with autistic children that simply ignore them when having them. Timeouts and earning stickers for good behavior is a great way to deal with these, even if your in the middle of shopping it is best to stop and take a moment to let your child reflect on the situation and encourage them that it’s ok to feel the way they do, but they must learn to express it in a more calm manner to control their own stress levels. I know I have went on and on, but let me share one strategy that I have found works.
Take tennis balls and the holder. Color the balls. One green, yellow & red. Take privileges you allow them at every level. Red basically being grounded, but still allowing something to occupy their time. When they misbehave take the green ball, which would be all privileges. When on yellow they only have certain privileges they get because of their behavior. So on and so forth. Allow you child to earn the higher privilege levels back. This shows the can be rewarded for good behavior and positive reinforcement is always good. My son cannot stand loosing his green, as over time he has learned to be proud of keeping his privileges. Every week allow them a small reward for staying on green. My son gets a cheap car every week for staying green. This takes consistency from the parent otherwise it cannot work. As far as the child understanding the purpose, don’t give up. They will get it. There are any ways to reward good behavior, this is just one of my favs. I have found that the more positive you are about anything your child does the more positive they are. My son has lots of friends who sometimes allow him slack that they wouldn’t give other peers. I try to let them know that he should be treated the same as everyone else, because I would never want him to learn he is better than anyone else. If he thought that now “life” would be very hard on him once he is older. I love the fact that parents can get help from others and I think we should all learn that autism is special, but our children need to learn they must cope with their difficulties in life so they can be a part of society without feeling so out of place. I want for my son to know he is special because we all are, but I want him to understand his disabilities are not a crutch to get his way. I hope I have helped. Parents of autistic children must stay focused and it is hard work, but if we want our “au-some” kids to be learn we must see that it is done. Sometimes we underestimate what can be taught, even if it takes being very repetitive, they can learn and learn well. Only if we figure out their unique way of thinking.”

Violence is a worry for Valerie ” Violent behaviour towards myself & my other daughter is my biggest struggle and as someone else mentioned, she is getting bigger and stronger and I am less able to stop it. She often won’t listen to reasoning when I try to explain the reasons why I am not allowing her to do some of the things she wants to”

Late diagnosis was Vicky’s big concern: “My biggest struggle was because my daughter wasn’t diagnosed (11) , before her diagnosis I had no idea why she was behaving the way she was , she was diagnosed aged 7-8 with ADHD but still some if her behaviour didn’t make sense to me , just over a yr ago the docs mentioned ASD , when I looked into so much made sense , 10 mths ago she was diagnosed , theirs still a lot I need to understand and learn but just getting the diagnosis had changed do much x”

A similar situation for Louise ” Life can be a struggle and emotionally exhausting to list a few my sons 13 only got diagnosed with autism in May he’s managing to cope better as he’s getting older but still has his moments his speech has improved thanks to speech and language gives eye contact thanks to a p2 teacher and is finally able to socialize a bit better and is actually making friend he’s came on leaps and bounds over this past yr and has a great support teacher in high school we don’t have a really close family my husbands foster mum some times watches our son if needed but that’s it!!! so can be very lonely at times when he would have a melt down at school bite someone or kick and punch they other mothers didn’t understand as he got made to be the bad kid and kids just started to no like him same with some of our friends who have “perfect kids” they think its not normal behavior but in bens world it is!!! thankfully he’s growing up to be a lovely young man can be very loving and helpful but as he’s officially a teenager now I have the huffiness and major over reactions which he finds hard to control himself but life would be very dull with out him all I do is support him the best I can as he’s growing up its a worry though will he get a job and stick to it will he settle down with someone suppose only time will tell x”

Melissa looks at us as parents and says “My biggest challenge as a parent is patience. My son is very smart but sometimes it takes him a while to pick up on simple things. Being patient makes things less stressful for all of us.”

Monique mentions foods “My twin sister, aged 30 (diagnosed at age 5) only eats 7 foods-fried bacon, fried chicken thigh, juiciful oj, ovaltine biscuit, mangoes(3types), oranges and water . note specific names. My parents had to buy her food in bulk first then get grocery for the rest of the fam. Finances were a challenge but we are still managing. Behaviour wise she jumps and make sounds when excited. She used ti throw tantrums when not getting what she wants. She is much calmer now. She speaks a few words. Her non verbal communication is very good. As a fam we have learnt great patience and understanding. She is a blessing to us. Her interests are watching beauty pageants and history documentaries, using the computer, figuring out electronic equipment. She knows all the flags and countries of the world but cant spell cat. She can write them in any order she wants whether alphabetical or by region. She is a mild case. She loves to play in her hair and style it . she smiles and hugs a lot when she is ready.”

For Sara as with many parents communication is a big issue “My son is 14 and is high functioning. My biggest struggle is dealing with how he converses. We understand that he obsesses about certain subjects and struggles to hold a “normal” conversation with others. He gets bullied often because most kids his age have outgrown his interests and think he’s weird. We work on proper conversing techniques, asking about the other person etc. He forgets when he’s excited and won’t stop talking until he’s made his point, even if interrupted. It’s hard to know he’s struggling at school and not being able to be there.”

As it is for her namesake “My biggest struggle is trying to figure out my daughters wants. She has limited vocabulary. She’s a runner so I have to have a constant eye on her outside and have to make sure she has zero access to the front yard. If her routine gets messed up I have to be ready for a meltdown because it will happen. When she’s upset, which doesn’t happen often, she pulls hair, pinches, or bites while she is screaming. She doesn’t understand dangerous situations so I have to make sure to keep her safe at all times. for instance if I’m cooking on the stove top I make sure to use the back burner but she’s kept out of the kitchen with a baby gate. All doors to bedrooms, hall closets, and bathrooms are locked at all times. I would never trade her for what society deems a normal child as God chose our family to love and care for her. She touches the lives of those she meets and our church absolutely adores her. I have told people you never know unconditional love till you spend an hour with her as all she sees is joy”

Finally Jamie highlights the costs involved in bringing up a child with autism “We felt Ryder who’s 3 wasn’t ready for preschool this year. Our biggest struggle is finances! Only one person can babysit him, which is grandma. She can only handle him 2 days a week due to his meltdowns. That leaves daddy as his full time caregiver. I am ashamed to say I can’t handle my son due do to my back. So, I work full time, and daddy maybe gets 2 days a week. I gross Max $2,200 a month, Ryder get ssi disability plus whatever daddy can bring home. No credit cards to help the in between. Rent alone is $1000. Utilities and food. Don’t qualify for foodstamps. It’s stressful trying to make ends meet. Family gives us toys for ryders birthday. Each one has caused us nothing but grief and meltdowns. That includes gifts for my daughter who’s 11. But our boy is so beautiful and amazing. One hour at a time.”

So please do comments on these idea and share any advice you may have.

Many thanks in advance.

Urology Awareness Week – please help us raise awareness of urological cancers: kidney, prostate and bladder cancers!


Urology Week is an initiative of the European Association of Urology, which brings together national urological societies, urology practitioners, urology nurses and patient groups to create awareness of urological conditions among the general public.

The efforts of the 2014 campaign focus on creating awareness on the three most common urological cancers: kidneyprostate and bladder cancer. A cancer diagnosis has profound effects on patients’ lives and the lives of their loved ones. Work and social life are disrupted, and work, financial and even legal issues become pressing. It is important to create awareness about the different possibilities for treatment and the support available for patients.

You can find more details of events near you here.

The European Association of Urology have produce a poster which would be great if you could like and share.

Urology Week 2014

Urology Week 2014


Have your say on the future of Children’s Hearts services – Find out about New Congenital Heart Disease Review


New Congenital Heart Disease Review

New Congenital Heart Disease Review

I get loads of press releases as part and parcel of running a blog. Normally to be honest they are too boring to read. Especially if they are from any kind of government body.

But in this case I thought it was actually very interesting. Indeed one of those very few occasions where anyone in the healthcare world wants to know what patients actually think.

So here goes!  According to Leicester Hospitals:

“Today marks the start of a three month consultation period of proposed standards for the New Congenital Heart Disease Review. The standards will dictate how congenital heart surgery is delivered by centres in the UK, including Leicester’s Hospitals.

An event will be held by NHS England in Leicester, on Friday 24 October to give supporters of the East Midlands Congenital Heart Centre a chance to review the standards and find out how this review is different to the Safe and Sustainable review.

The New Congenital Heart Disease Review, being undertaken by NHS England, aims to drive high quality care for children and adults with congenital heart disease wherever they live. It was launched in June 2013 after the ‘Safe and Sustainable’ Review collapsed.


Giles Peek, consultant cardiothoracic surgeon for Leicester’s Hospitals, said: “We would like to take this opportunity to thank all the people who supported our service and fought against ‘Safe and Sustainable’, which threatened to leave the East Midlands without a children’s heart surgery centre. Without this support, the new review would not have been commissioned and we might not have the bright future we have now.”

Giles continues, “We welcome NHS England’s up front approach and encourage as many people as possible from across the East Midlands to attend this event in Leicester. It is important that those who have supported our service and fought hard to keep it open understand what NHS England is proposing and how the service will be delivered.”

The event on 24 October will give patients, families and the public a chance to comment and provide feedback to NHS England on their proposed standards. The drop-in style session will take place from 2pm until 8pm and members of the review team will be on hand to answer any questions. The venue is yet to be confirmed by NHS England.

If you would like to register your interest for one of the consultation events or if you need further information, please contact the new CHD review team by:
Email: england.congenitalheart@nhs.net
Call: 0113 824 8232
Address: FAO: New CHD review team, NHS England, Floor 5E58, Quarry House, Quarry Hill, Leeds LS2 7UE

MyNHS – A sort of TripAdvisor for healthcare. Check it out. It’s Hours of fun.


MyNHS

MyNHS

I found myself yesterday afternoon at something of a loose end.

Sitting at my desk I heard the ping of an incoming email and immediately stood to attention.

For it was an announcement from Her Majesty’s Government. Indeed it told of the news that the National Health Service have knocked up a portal of information about various parts of UK medical services.

It allows us the users of the healthcare to weigh up such vital questions as what is the chance of us dying popping into our local hospital for an x-ray.

If I sound a bit jaded it come from years of tying to get information from government sources and the NHS in particular. (I was once told that the number of doctors working in intensive care in the UK was confidential).

But while the site ain’t great. It is a start.

It puts together data on such subjects as:-

  • patient safety
  • efficiency
  • quality
  • public health
  • social care commissioning
  • hospital food standards

in one place so if you are interested, (and if you live in the UK you should be) have look at at the MyNHS site.

By the way is it just me or does anyone else think the name it total rubbish.

Anyhow if you do look at the site please review it using the comments section below!


Are you seeing things clearly?- submit for questions here for next weeks show on eye health and how to spot possible eye problems


Khalid Ikram

Khalid Ikram

Log on to our live and interactive web TV show where Consultant Ophthalmic and Refractive Surgeon Khalid Ikram talks about some common eye health myths and gives advice on how to look after your eye health and spot potential problems

It’s something many of us take for granted, but good eye health is by no means guaranteed and while age is a key factor in the deterioration of our eyesight and the health of our eyes, there are many more factors that can contribute.

According to a survey conducted by Spectrum Thea 94% of Optometrists don’t think as a nation we take our eye health seriously or take care of our eyes as much as we should.

Our reliance on computers and digital devices as well as things like diet, alcohol consumption and smoking can all have an impact.

And if, like millions of Brits, you’re not getting your eyes tested regularly, then you may not even be aware that you have a problem.

To help spot the signs log on to our live and interactive web TV show where Khalid Ikram discusses some common eye myths, demonstrates exercises to help your vision and answers all your questions on how to keep your eyes healthy.

Click here to submit questions before the show

Khalid Ikram, Consultant Ophthalmic and Refractive Surgeon and Janet Peacock joins us live online at

 

on Monday 22nd September at 1pm


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