Jack Osbourne describes MS diagnosis as his “scariest moment”
Jack Osbourne talking in the video about his own diagnosis of multiple sclerosis. He also introduces us to the work of the MS Society and talks to people with MS.
Check it out below!
I discovered yesterday, somewhat to my surprise, that I have been blogging about healthcare related issues since 2006. And then, as today, one of my main areas of focus was multiple sclerosis and providing support for PwMS.
One thing I noticed during those early days (and it is trend that is still with us) was discussion about celebrities who have lived or are living with multiple sclerosis. I always suspected that this was due, in part, to the curious status of MS being a minority condition when compared with, say, diabetes but still with a substantial prevalence. It has been suggested that there are nearly 2.5 million people across the globe who suffer from multiple sclerosis. If we take into account family and supporting friends then the MS community is pretty substantial.
But that does not stop many with multiple sclerosis feeling more than a bit of isolated. This causes a wholly natural interest in other people with MS. Both in our local communities but also in celebrities worldwide.
The purpose of this blog to share a few of the famous people who have or have had multiple sclerosis who I feel have made a contribution to the MS community in some way. This can be directly or indirectly, of course. Second is to ask you to contribute your suggestions of celebrities who have helped the multiple sclerosis awareness cause. So here are my top five.
a) Montel Williams. The famous American talk show host was diagnosed with MS in 1999. Since then he has pioneered social media as a way of getting the MS message out. In 2000 he founded the MS Foundation which promotes awareness and research. You can check out his web site for more information http://www.livingwellwithmontel.com/Home.aspx./
b) Jacqueline du Pré. The world famous cellist died at the age of 42 in 1987. She was diagnosed with MS in 1973; a couple of years after the first symptoms appeared. Important not just for her musical work but because her struggle with MS helped to raise the profile of the condition with the British public.
c) Richard Pryor. The break through US comedian who almost single handily invented the new generation of stand-up humour in the seventies and who died in 2005. Importantly he used his web site to talk about the condition and thus raised awareness.
d) Jack Osbourne, an English media personality, was diagnosed with MS last year (2012) in his mid-twenties. A user of stem cell therapy (https://patienttalk.org/?p=1058) his performances on Dancing with the Stars have inspired a new generation.
e) Heinrich Heine (1797-1856) was a famous German romantic poet. In truth the MS diagnosis is not certain but he is included in my list to show that MS is nothing new. To get a feel for his poetry, albeit in English translation, please have a look at http://www.poetry-archive.com/h/heine_heinrich.html.
So who has inspired you? Please feel free to use the comments box below to share, who in your view, has help the multiple sclerosis community and why.
Thanks very much in advance.
| SherrieGoldberg | Aaron Solowoniuk, the drummer for Billy Talent. After being diagnosed at 24 he quit his job to be a full time drummer. After he had the first song on their self titled album to allow everyone to know what MS patients experience everyday. He started a charity concert which was called F.U.M.S. and a blog site for those in their younger years suffering with MS. Between that and their anti-bullying campaign I have the utmost respect for him and the band. |
| Kathy Doiron | If I’m inspired at all by a celebrity, it’s Shemar Moore, who plays as large a role as he can in this battle on behalf of his mom: “When you’re a kid, your parents are invincible,” added Moore. “I always thought of her as my super mom and MS is her kryptonite. She’s cracked a little bit, but I always say that she’ll never break.” Shemar has watched MS steal more and more of the mama who raised him, and is using his celebrity status to fight her enemy. I’m inspired by his dedication to his mama – by the fact that he has never let his celebrity status lessen what he feels for her. Having said that, however, I have to agree with the person who pointed out that celebrities, while not having an easier time with the disease, do have the resources that most of us don’t have. I’ve struggled to find someone to mow my lawn once every ten days or so, with no success. One of my pastors thought he’d found someone to do it, but it turned out not to be the case. I can no longer shovel snow or care for the lawn, so it would be a huge blessing in my life if I could just offer someone enough money to make it desirable for someone else to do those tasks. As a single woman struggling to work full-time with this fatiguing disease, it’s frustrating to break down and ask for help, and finding no-one willing or able to help. I’m not implying that celebrities don’t struggle as much as the rest of us, but oh, it would be nice to have the financial resources! |
| Missy Reed | MelanieJohnson2 u inspire me. I was a single mom with 4 kids and worked 3 jobs, but I was not diagnosed until they were grown and had kids of their own. So I could not imagine doing what you do everyday. My hat goes off to u |
| stewartlv | Country Music singer Clay Walker who also has MS |
| BevWashington | Many of the Osmond family have it too. |
| tflinn75 | Annette Funicello (sp?)…her story is pretty inspiring…especially the way her husband stayed right by her side and cared for her himself right until the very end. |
| Just have to Say | Janice Dean (Fox Weather person) |
| Just have to Say | JayRaymond Nick Cannon does not have MS. He has a different autoimmune disease. |
| MelanyKimblerFarr | Neil Cavuto – he memorizes his reports for the days that his eyes act up and he can’t see the teleprompter. |
| BarbaraSkinner | NASCAR driver Trevor Bayne. DX in Nov 2012. Only 22 at the time. Plans on to continue driving as long as he is able. |
| MelanieJohnson2 | People with money.. who can afford proper care and assistance do not inspire me. I managed all alone, on my own living with RRMS I am raising 3 kids as a single mother working on a dairy farm to pay my bills and soothe my soul.. and all with little or no Health Care. I am my own inspiration! |
| AmyGates | clay walker |
| RuthDickinsonShroyer | Also Alan Osmond. |
| TijanaEder | Clive Burr – the first drummer of Iron Maiden. Passed away in march this year 🙁 R.I.P! |
| jmartella j |
Don’t forget Teri Garr or Annette Funicello (sorry for the misspell) on sweet Annette…. |
| Ozziesmom32 | Josh Harding Minnesota Wild 🙂 |
| michelesgibbs | Chris Wrght of the Dallas Mavericks! He was my first inspiration to beat this! He was once in a wheelchair and overcame it and became a pointguard |
| lkpetzoldt01 | I was diagnosed in June of 03. I was having a problems with severe headaches. So they did an MRI an found white spots in the frontal lobe of the brain. Dr. sat down by my bed an said I believe you have MS..first reaction what “WHAT”. Couldn’t believe it. So they did a spinal tap to confirm it in the spinal fluid..and said Yes! I would like to Thank all my friends an mother for all their support. They have been amazing an nothing less! I read the book BlindSided by Richard Cohan. Very helpful! An Trevis Gleason on facebook has also helped so much with Any Questions! I find the change of the seasons affect me the most with some joint pain an fatigue. I have started a Jazzercise Class to give me more cardio, balance an strength, the ladies are wonderful. I keep in close contact with some girlfriends from High School, Yes even at this age. They seem to always know the correct things to say..AND mean it! Yes I do have fatigue, joint pain on the right side. Thank you so much for posting this! Sincerely, Linda K. Petzoldt |
| KatrinaScottSmith | Ann Romney! She is such an inspiration to me. |
| TootseLee | Exene Cervenka – X (the band.) Chrissy Amphlett R.I.P – The Divinyls |
| JayRaymond | Nick Cannon |
| blogger1962 | Dancer/Actress Lola Falana |
| Janet Fishman Palmer | Lola Falana. |
| ellen79 | Annette Funicello |
| KatrinaScottSmith | In reply to KarenPowell1.KarenPowell1 I LOVE Ann! I have so much in common with her, except my husband isn’t a wealthy politician and I only have 4 boys. 😉 |
| KatrinaScottSmith | In reply to InezGilbert.Joyce Pharis InezGilbert MrsKarrieT My maternal grandmother had MS, died in 1947 at age 24 (my mother was only 2). My older sister had MS, diagnosed at 19, died in 1999 at age 33. I am 43 and was just diagnosed. I plan to kick this thing in the REAR! 😉 |
| KatrinaScottSmith | Ann Romney! |
| Linda Marshall | In reply to InezGilbert.Joyce Pharis InezGilbert MrsKarrieT My Daughter was first dx when she was 20 she is doing very well she has not let it get her down she is always in the sun.runs 5 miles a day weather permitting also eats healthy!! I was dx in 1996 I was born in Pa we both lived in Miami then moved to DE |
| Joyce Pharis | In reply to InezGilbert.InezGilbert Joyce Pharis MrsKarrieT I was told it was thought to be more about location than genes but the ones who think this obviously don’t have kids with MS. I asked my neuro how many people in my area (central Illinois) has MS. He said many more than I think. To me its too much of a coincidence that my daughter would have it too. |
| KarenPowell1 | Although our faith beliefs are different, I have been truly inspired by Ann Romney – this is the information copied from Wikipedia: Ann Lois Romney (née Davies; born April 16, 1949) is the wife of American businessman and politician http://en.wikipedia.org/wiki/Mitt_Romney, who was thehttp://en.wikipedia.org/wiki/Republican_Party_(United_States) nominee in the http://en.wikipedia.org/wiki/2012_United_States_Presidential_Election. From 2003 to 2007 she was http://en.wikipedia.org/wiki/First_Lady of http://en.wikipedia.org/wiki/Massachusetts while her husband served as governor of the state. She was raised in http://en.wikipedia.org/wiki/Bloomfield_Hills,_Michigan, and attended the private http://en.wikipedia.org/wiki/Cranbrook_Kingswood_School there, where she dated Mitt Romney. She converted to http://en.wikipedia.org/wiki/The_Church_of_Jesus_Christ_of_Latter-day_Saints in 1966. She attended http://en.wikipedia.org/wiki/Brigham_Young_University (BYU), married Mitt Romney in 1969, and in 1975 received a Bachelor of Arts degree in French. As First Lady of Massachusetts, she served as the governor’s liaison for federal faith-based initiatives. She was involved in a number of children’s charities, including http://en.wikipedia.org/wiki/Operation_Kids, and was an active participant in http://en.wikipedia.org/wiki/Mitt_Romney_presidential_campaign,_2008. Romney was diagnosed with http://en.wikipedia.org/wiki/Multiple_sclerosis in 1998 and has credited a mixture of mainstream and alternative treatments with giving her a lifestyle mostly without limitations. In one of those activities, http://en.wikipedia.org/wiki/Equestrianism, she has consequently received recognition inhttp://en.wikipedia.org/wiki/Dressage as an adult amateur at the national level and competed professionally in http://en.wikipedia.org/wiki/Grand_Prix_Dressage as well. In 2008, she was also diagnosed with http://en.wikipedia.org/wiki/Ductal_carcinoma_in_situ, a non-invasive type of http://en.wikipedia.org/wiki/Breast_cancer. She underwent a http://en.wikipedia.org/wiki/Lumpectomy in December of the same year and has since been cancer-free. She and husband Mitt have five sons, born between 1970 and 1981, and twenty-two grandchildren. |
Over the last few years we have covered the symptoms and treatments of multiple sclerosis in some detail.
Today we would like to turn our attention to the causes of multiple sclerosis and more specifically what you think are the causes of MS?
To that end we have set up a poll looking a some of the possible causes. Please choose which you consider to be the causes. You can select more than one.
Many thanks in advance!
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| Maygrelle | When I was a kid, our dog had a litter of puppies. There were four of us kids and four puppies. Until the pups went to their new homes, each of us kids got to claim and care for a puppy. After my puppy was sold, she came down with an unidentified illness that caused neurological symptoms. Her owner wrote to us detailing her symptoms. She eventually lost the use of her hind legs and was put down. Twenty years later, my sister and I were diagnosed with MS. After another 15 years, a 3rd sister is being evaluated for MS. Of the 3 of us, I, the one who spent the most time with that puppy, have by far the most serious course of the disease. I can’t help but think that whatever caused that dog to become ill might also be behind multiple sclerosis. I know that researchers have looked at, and ruled out, canine distemper. It’s not so far fetched to think that another canine virus might be to blame. |
| Rebecca2501 | I think I have always had it and the symptoms became more apparent after the trauma of the birth of my first child. |
| Cheryl12750 | I feel that I was born with MS. It just took until I was 24 to be diagnosed. That was over 40years ago. |
| BethWelchOkonczak | The predisposition of development of MS is within the HERV-W, a dormant retrovirus that has been embedded in between the 6th and 7th chromosome in human DNA since before we were humans. This retrovirus is activated via catalysts such as Mononucleosis, Strep, Epstein-Barr, Chicken Pox, and other viruses. Once activated, the virus will cause the lymph nodes to create abnormal and deformed proteins, such as fibrinogen which are small enough to leech through the blog brain barrier. These cause a reaction from the immune system and the white blood cells attack the myelin tissue. Additional genetic predispositions can complicate this. Allergies, dietary reactions, poor nutrition, lack of vitamin D, lack of exercise, ingestion of toxins like glyphosate, mercury, aspartame or fluoride, all contribute to the volitility of the MS response and the ability of the body to recover from a relapse. |
| fedupandconfused | Pertussis / whooping cough. Never been the same since 🙁 |
| LourdesRiveraMiranda | I sincerely believe that our immune system is healthy, but that it reacts to the agents that activate ms. For example vaccines, contaminated food and water. Then these reactions doctors called them Multiple Sclerosis. |
| BillyRiser | my vit d levels were very low, that i took 50,000iu 2 a week. til it got normal, but i had ms already. also heard it could be from mono, which i have had when i was a kid. |
| jesse | .
thanks!! |
| TeresaJane | Honestly, I believe that we are genetically predisposed to develop MS. Everything I read and my history of symptom relate back to something that makes us more prone to develop the disease. It has to start with a genetic factor. My mother has a lot of the symptom that I have had, although she was never tested for MS (no brain or spinal MRI for lesion, no spinal tap or any other MS related testing). She was diagnosed with DDD, arthritis, carpel tunnel syndrome and many nerve issues. She lives in chronic pain and has had multiple spinal surgeries. Her sister also has severe Rheumatoid arthritis. My father doesn’t seem to have nerve or spinal issues, but my youngest brother has undiagnosed issues. He is just too stubborn to see a Dr. I have a cousin who has been diagnosed with Lupus and possible MS on my father’s side. I grew up in a city that had heavy lead contamination at the time for a local “plant”. Which is now shut down, of course. There have been several people I grew up with who have developed MS or other rare autoimmune diseases. I had random neurological symptoms for about 11 years before I got “pink eye” while working as a school nurse. A month after that resolved I began losing my vision in the same eye (optic neuritis) and that lead to my diagnosis along with my history of undiagnosed symptom and MRI that also showed many “old” lesions. Wow… So, to sum it up, I truly believe it is a combination of genetic, environmental and immunological factors. We have to have all of the right components to trigger the disease which hides in our bodies. And from what I have read, that is how science sees it. Although they still can’t find a cure. But how do you cure something that you were born to possibly/probably develop? |
Pain and sleep disorders often cause confusion and frustration for people with MS, their loved ones, and healthcare providers. Learn from scientists and clinicians about strategies for symptom management, available treatment options, and ongoing research to identify the cause of pain and sleep disorders in MS.
