Living with multiple sclerosis – tips about driving, money and relationships!

Multiple Sclerosis
Multiple Sclerosis

Relationships, support and care

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Coming to terms with a long-term condition such as MS can put a strain on you, your family and your friends. It can be difficult to talk to people about your condition, even if they’re close to you.

Dealing with the deterioration of symptoms, such as tremors and increasing difficulty with movement, can make people with MS very frustrated and depressed. Inevitably, their spouse, partner or carer will feel anxious or frustrated as well.

Be honest about how you feel and let your family and friends know what they can do to help. Don’t feel shy about telling them that you need some time to yourself, if that’s what you want.

Support

If you have any questions, your MS nurse or GP may be able to reassure you or let you know about the other support that’s available. You may find it helpful to talk to a trained counsellor or psychologist, or to someone at a specialist helpline.

Some people find it helpful to talk to other people who have MS, either at a local support group or in an internet chatroom.

Care and support services

It’s worth taking time to think about your specific needs and what you might need to achieve the best quality of life. For example, if your balance and co-ordination are affected, you may want to think about equipment and home adaptations.

It may be useful to read your guide to care and support. It includes information and advice on:

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Having a baby

Being diagnosed with MS shouldn’t affect your ability to have children. However, some of the medication prescribed for MS may affect fertility in both men and women.

If you’re considering starting a family, discuss it with your healthcare team, who can offer advice.

Pregnancy

Women with MS can have a normal pregnancy, deliver a healthy baby and breastfeed afterwards.

Having a baby doesn’t affect the long-term course of MS. Relapses tend to be less common in pregnancy, although they can be more common in the months after giving birth.

You may need to continue taking medication throughout your pregnancy. However, some medication shouldn’t be taken during pregnancy, so it’s important to discuss this with your healthcare team.

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Money and financial support

If you have to stop work or work part-time because of your MS, you may find it hard to cope financially. You may be entitled to one or more of the following types of financial support:

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Driving

If you’ve been diagnosed with MS, you must tell the Driver and Vehicle Licensing Agency (DVLA) and also inform your insurance company.

In many cases, you’ll be able to continue driving, but you’ll be asked to complete a form providing more information about your condition, as well as details of your doctors and specialists. The DVLA will use this to decide whether you’re fit to drive.

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[Original article on NHS Choices website]

Invitation to a free webinar on relationships, love and family dynamics when affected by chronic illness like Multiple Sclerosis on February 11, 2016 4PM EST/ 21:00 UK

MS and relationships
MS and relationships

On February 11  at 4PM EST GeneFo will be holding a free webinar on relationships, love and family dynamics when affected by a chronic condition with Dr.Opie-Moran a clinical psychologist who specializes in supporting patients with chronic conditions, and Sheryl Skultesky MS advocate extraordinaire!

Dr. Moran will discuss how to sustain thriving relationships and families and Sheryl will tell us about raising 2 teenagers while being diagnosed with Multiple Sclerosis. Registration link  www.genefo.com/webinarms


Registering for the webinar unlocks many other great features for MS patients and caregivers, delivered on genefo.com :

GeneFo, founded by Stanford geneticist Dr.Wilnai, is a patient crowdsourcing platform that innovates by going beyond matching patients that have the same condition, and actually classifies & matches them according to their specific Multiple Sclerosis type.

Patients and caregivers can use GeneFo to

  • Get patient peer advice and support
  • Track their condition via personal health management reports
  • View and compare real-time stats on what works for others with a similar medical profile
  • Register to get matched to clinical trials according to location and profile
  • Consult with an in-house medical team
  • See unbiased reviews of medical & alternative treatments and providers

And the best part?  No more sifting through endless posts and web pages – All of these features are perfectly organized and delivered in one screen!