Glandular fever! What is glandular fever and what are your experiences with glandular fever? And more on the Epstein-Barr virus

Glandular Fever

Glandular Fever

“Your glands are up!”

How many of us can remember that phrase from our childhoods.  Indeed in each year, according to the UK’s National Health Service 1 in 200 people will contract glandular fever.  That being said, most people who get glandular fever are in their late teens and early twenties.

When I was at school one of my fellow students had a bout of glandular fever resulting in weeks if not months off sick.

So I felt that it could well be useful to produce a brief guide to glandular fever as part of our series of informational blogs.  As with all our blogs your participation is most welcome.  It would be great to hear about your experiences of glandular fever and its impact upon your life and health.  This will, we hope, provide support for others in a similar situation.

The majority of people who develop glandular fever do so in a period of around two months after contracting the Epstein-Barr virus.  This is perhaps the most common virus which has been covered in a previous blog here https://patienttalk.org/calling-everyone-with-an-autoimmune-condition-have-you-ever-been-infected-with-the-epstein-barr-virus/.  I think the comments section is of particular value.

The main symptoms  of glandular fever are:-

1)                       Fever.  As the name suggests of course.  In this case it is likely to be over 38ºC or                           100.4ºF (in old money).

2)                       Swollen nodes or glands in the neck.  Hence the name glandular fever.

3)                       Sore throat.

4)                       Fatigue.  You can read more about the impact of fatigue by checking out our recent patient experience blog.  https://patienttalk.org/fatigue-like-wet-cement-exploring-the-difference-between-tiredness-and-fatigue/

In some cases there are a number of rarer symptoms.  These can include jaundice and swollen adenoids.  Jaundice is more common with people in the older age brackets who contract glandular fever.

Normally the infection lasts about two or three weeks, starting to get better after around one week albeit slowly.  That being said the fatigue may last for up to six months after the other symptoms have disappeared.

In milder forms of the fever treatments are normally painkillers which also help fight the inflammation.  In more serious cases hospitalisation may be required.

It is worth noting that there does seem to be a link between Epstein–Barr viral infection and contracting a number autoimmune conditions and other illnesses.   In particular Parkinson’s disease,  Lupus (https://patienttalk.org/?tag=lupus), rheumatoid arthritis (https://patienttalk.org/?tag=rheumatoid-arthritis), and multiple sclerosis (https://patienttalk.org/?tag=multiple-sclerosis).

So over to you.  We are always really interested in the experiences of our readers of their medical conditions.  It would be great if you could share your glandular fever story in the comments box below.

You might care to consider the following questions while sharing your story:-

a)                        At what age did you develop glandular fever?

b)                       What were your symptoms?

c)                       Do you know what the cause was?

d)                       How you were treated and how successful were the treatments?

e)                       Finally, if you contracted the Epstein–Barr virus did you have any complications afterwards such as an autoimmune condition?

Please just think of these questions as a guideline.  It would be great if you could share anything you think may be of interest about glandular fever.

Thanks very much in advance.

Autoimmune conditions! How many auto-immune conditions have you been diagnosed with?

Autoimmune disease awareness

Autoimmune disease awareness

Having worked in healthcare for nearly ten years (first as a research now as a blogger) I have always been interested in what we can call the diagnostic profile of people with autoimmune conditions.

To get an overall introduction to autoimmune conditions please check out this article – https://patienttalk.org/autoimmunity-what-actually-is-an-autoimmune-medical-condition/.

One of the areas that interested me was that there does seem a strong pattern of people who have one autoimmune condition such as fibromyalgia developing another like lupus or rheumatoid arthritis.

I think it is worth quantifying this further so I am running a short poll to find out how many different autoimmune conditions each of our readers have been diagnosed with.

It would be great if you could use the comments box to share which autoimmune condition these are!  Many thanks in advance.


Did you know that there are more than one type of arthritis? Which type of arthritis do you have? Please take our poll.


Arthritis

Arthritis

Before I got involved in medical market research I was under the impression that there was arthritis and there was rheumatism.  And that they were pretty much the same thing.

It was just a few days into that job when I discovered how wrong I was.  Indeed I’d never even heard to Fibromyalgia or Lupus in those days.  Which is pretty poor form given my grandmother suffered from Rheumatoid arthritis for almost all her life.

So I thought it would be useful to find out more about the types of arthritis that our reader have been diagnosed with.  With this in mind I have set up a new poll.  If you do have an arthritic condition it would be great if you could take part.

This will also help us to make sure future blog posts on arthritis are relevant to our readers

Thanks very much in advance



 


HealClick – find out about this new social media website for patients to discuss healthcare – a guest post by Rachael Korinek


HealClick

HealClick

Welcome to our latest guest post on healthcare and social media

Today Rachael Korinek introduces us to to HealClick and new social media website for patients to discuss healthcare issues.

Korinek shares “HealClick is a brand new and completely free website created for patients and by patients. This unique hybrid of social network and medical forum matches people based on shared details like diagnoses, symptoms, and treatment responses. This makes it much for patients to share and compare treatment experiences. The data that you and other patients provide will be made completely anonymous so it can fuel new research for autoimmune and neuroimmune conditions like Fibromyalgia, Rheumatoid Arthritis, Lupus, Lyme Disease, ME/CFS, and so many others.

Sign up at www.HealClick.com

Help us grow at www.indiegogo.com/projects/revolutionizing-patient-sharing

This project was created by a team of patients in 2013. The co-founders are both chronically ill with multiple neuroimmune and autoimmune conditions. This unique perspective has allowed them to create a site that truly caters to the needs of patients.

Forums are extremely helpful  when researching treatments and for connecting with other patients. But, what about when you can’t find anyone your age?  Or when it seems like no one shares your set of co-conditions and symptoms? What about when you don’t respond normally to standard treatments? Come on over to HealClick.

Our unique matching feature allows you to focus on what’s important; your health. The site factors in your diagnoses, symptoms, treatments tried, and treatment responses and then tells you how similar you are to every other member. No more guessing whether you and another member share medical details in common, just check the match percentage under their profile picture.

Sometimes networking with people with different conditions can be just as beneficial as talking to someone with the same illness. We currently have patients representing over 20 different neuroimmune, autoimmune, and related conditions. Since we have so many conditions represented on our site you can also see how patients with other diagnoses are managing similar symptoms. There are many symptoms like fatigue that are common with multiple conditions and we believe that patients can learn from these other patients even though they might not share a diagnosis.

By combining information from your medical matches and ideas from patients with other conditions we believe that you will be better able to take charge of your health care. Come sign up, make meaningful connections for social support, share your treatment reviews, and compare your results with the results of other patients. Who knows, you might even end up with some new ideas to bring up at your next appointment with your Doctor!

Whenever people share their experiences and network with other patients online they generate huge amounts of data.  Previously, the majority of this valuable health data has gone unused. What if instead, all of this data could be used by medical researchers to help diagnose, treat, or even cure us? That’s HealClick’s goal. But don’t worry, we take pride in protecting patient privacy every step of the way. The data that you share on the site will never be made public and will be completely stripped of all identifiers before being shared with researchers. Check out the link for more information about HIPAA-compliant data security.


We are so excited to share this technology with you. We also want you to know that we pride ourselves on being there for patients.  I don’t have to tell you that having quality social support is important. Chronic illness can be incredibly isolating and hard for other people to relate to or understand. The founders as well as the entire HealClick team all patients. We understand what you’re going through on a personal level and we strive to make HealClick a place where you can find support on bad days and celebration on your good days.

Come join us at www.healclick.com. We can’t wait to meet you!

Still have questions? Check out our blog for answers to 5 frequently asked questions:  http://blog.healclick.com/uncategorized/we-got-answers

Optic Neuritis – what treatments have you received for optic neuritis? Take our poll

Optic Neuritis

Optic Neuritis

For many of us optic neuritis is one of the first symptoms that present for multiple sclerosis.  You may be interested in a previous blog we ran where many of our readers told their optic neuritis story.  You can read them here https://patienttalk.org/?p=312.

That being said their are a number of other conditions which can also lead to optic neuritis.  These include syphilis, Lyme disease, herpes zoster, lupus, neurosarcoidosis, inflammatory bowel disease, vasculitis, and diabetes.

Today we would like to explore in more detail the treatments people have received for optic neuritis.

It would be great if you could take our poll below to share your experiences.

Feel free to use the comments box below to add anything you think may be of interest to our readers.

Thanks in advance