Will President Trump be good for the Fibromyalgia and Autoimmune illness communities in America?

PPresident Trump and the Autoimmune Community
President Trump and the Autoimmune Community

Ten days ago I was in a discussion with a few friends about the recent US Presidential inauguration and the election in 2016 of President Trump.

Given we were all in the medical world we were interested in the impact of President Trump’s election on different aspects of healthcare. Not just the repeal of Obamacare!

I ran a poll to get a feel for the views of the multiple sclerosis community. And I have to say I found the diversity and intensity of the different position fascinating. For more see here.

So I am keen to extend this research to autoimmune conditions and fibromyalgia in particular. So it would be really great if you would share your views by taking part in the poll below.

If you have anything more to share please feel free to do so in the comments box below.

Thanks in advance for your help.

Autoimmune conditions – what what actually is an autoimmune condition?

Understanding Autoimmune Disease

From Visually.

Turmeric Milk – a natural remedy for pain

Turmeric Milk - a natural remedy for pain
Turmeric Milk – a natural remedy for pain

Turmeric Milk – a natural remedy for pain

Some time ago we ran a blog post which discussed the various medical uses of turmeric.  One of its main uses is as a remedy for pain.

So we were delighted when Elizabeth Johnson of www.enliveninghealth.com shared this brilliant recipe for Turmeric Milk.

Ms Johnson very kindly tuned it into this infographic which she has allowed us to share with our readers.  Please do check out her fantastic web site Enlivening Health.  Ms Johnson’s  passion is inspiring others to thrive with autoimmune disease through the Autoimmune Paleo Diet & lifestyle.  A Holistic Nutrition Student she is also a Celiac with allergies to nuts and soy.

Do fee free to share your turmeric recipes in the comments section below!

Lupus – what are the signs and symptoms of Lupus?

Lupus – what are the signs and symptoms of Lupus.

In the very early days of Patient Talk we ran a discussion blog on Lupus (and other autoimmune conditions).

But we thought we would share this excellent infographic which gives and excellent overview of the signs and symptoms of Lupus.

If you do think you have any of these symptoms associated with Lupus it is important that you see a doctor or other healthcare professional as soon as possible.

Lupus: A Closer Look at the Autoimmune Condition Infographic

October is Lupus Awareness Month – Lack of Lupus Awareness is leading to delay in diagnosis say LUPUS UK. What was your experience?

Lupus Awareness Month
Lupus Awareness Month
“What?” I hear you cry October is Lupus Awareness Month? May is Lupus Awareness Month. And yes you would be right but this is one of those moments when the UK like to be different.

You could argue of course that the more awareness the better. And this is certainly the case with an autoimmune condition such as Lupus.

So I thought I would mark the month by letting you know a bit about some recent research conducted by LUPUS UK. They discovered that the average time from the first symptoms presenting itself and finally getting a diagnosis was over seven years. Which means that many people with Lupus were just not getting the treatments they needed to lessen the impact of the main symptoms and to limit potential damage to the kidneys, heart, lungs or brain.

Elyssa a 22 year old Lupus patient commented “”When I was a child my face would present the butterfly-shaped rash whenever I was exposed to the sun. My family GP would prescribe Roc sunscreen and that was that. As I got older I experienced a lot of fatigue and would sleep upwards of 12 hours a day. My GP suggested this was the result of teenage hormones and diet. At 19 a lesion grew on my face which would itch, weep, bleed, scab and peel. In the course of two years I saw three different GPs who all dismissed my symptoms or just prescribed topical antibiotics. It wasn’t until I refused to leave the GP’s surgery that I was referred to the hospital and had a breakthrough. When I met my consultant I was soon diagnosed as having lupus. The lesion started to fade and calm after less than two weeks on medication, and whilst it has scarred, it is ten times better than it was.”

So LUPUS UK has started a campaign along side h the Primary Care Rheumatology Society and The Royal College of General Practitioners to raise awareness amongst Primary Care Doctors such as GPs.

Chris Maker , a director at LUPUS UK expressed his concern about PCP support saying ” we do expect GPs to have an open mind as we know that early diagnosis leads to a better prognosis in most cases”.

I have to say I found this comment very troubling. So I am hoping to get your view. It would be great if you could share your opinions on the following questions?

a) How long did it take you to get a diagnosis of Lupus?
b) How well briefed do you think your family doctor was about Lupus and helping you get a diagnosis?

It would be great if you could share your thoughts in the comments section below!

Thanks very much in advance.