Do you have a diagnosis of Autism? Do you use social media? Have you ever used social media in the past? Please help with this survey?

Autism, Social Media and Cyber-bullying
Autism, Social Media and Cyber-bullying

Do you have a diagnosis of Asperger’s Syndrome? Do you use social media? Have you ever used social media in the past?

Charlotte Clark-Hughes has asked us to help her find people for a research study into cyber-bullying and autism.

Clark-Hughes writes “I am a Masters student at the University of Kent. I study an MSc in Analysis and Intervention for Intellectual and Developmental Disabilities and I am currently conducting a research study into the Occurrences of Cyber-bullying in Asperger’s Syndrome. This study explores the experiences that people with autism have had with cyber-bullying and social media as well as the impact which this has had on their self esteem. This is an extremely important topic to research, considering that previous research has indicated that social media has become an increasingly popular alternative avenue for communication and social interaction for people with high-functioning autism. However, it has been suggested that a lack of fluency in social interaction leads people to be more at risk from online victimisation.

Charlotte is currently recruiting for a questionnaire-based study investigating the cyber-bullying experiences of people diagnosed with Asperger’s Syndrome. If you would like to take part in the study please follow this link:

https://kentsspssr.eu.qualtrics.com/jfe/form/SV_eXoM12sCLQt6z8F

The questionnaire is online and should take no more than 15 minutes to complete. Responses are anonymous and you will also receive the option to enter a lottery draw for a £20 Amazon voucher. If you wish to know more about the study, please contact Ms Clark-Hughes by email (cc637@kent.ac.uk) and she will be happy to discuss the study with you.”

Autism and relationships – please help two students at Deakin University with their Doctoral Research.

Autism and Relationships Research
Autism and Relationships Research

My name is Grace Hancock and I am a Doctor of Clinical Psychology candidate from Deakin University, Victoria.

 Both myself, and fellow PhD candidate, Laura Pecora, are conducting a study that may be of interest to females diagnosed with Autism Spectrum Disorder (ASD). The project is being supervised by Associate Professor Mark Stokes. This study aims to increase knowledge about the experiences of friendships, relationships, and sexuality for individuals with ASD as they approach adolescence and early adulthood. The main aim of this research is to investigate the issues and challenges; as well as the positive factors that males and females on the spectrum face in their pursuit of fulfilling relationships and well being in all areas including sexuality.

 Given that there is extremely limited research of the experiences that are unique to this diagnostic population, we believe that improving the knowledge base in this area will work to increase awareness and foster greater understanding among parents, family, carers and supporters of persons with ASD. Furthermore we anticipate that the findings of this study will inform and enhance sex-education programs tailored specifically to address those concerns that individuals with ASD may experience. Accordingly, we are interested in responses from people who have a clinical diagnosis of High-functioning ASD or Asperger’s Syndrome, and are aged between 12 and 24 years, or their parents.

 Participation consists of answering an anonymous questionnaire, which can be accessed through the following link: http://psych.hosted-sites.deakin.edu.au/sbs


This should take approximately 25-35 minutes to complete.

 The study has approval from the Deakin University Human Research Ethics Committee- (DUHREC: 2014-270).

 

Autism – Condition or Disorder? How should autism be described? What’s your view?

Autism – Condition or Disorder?

Neurodiversity
Neurodiversity

That is it – really simple.

How should be refer to autism now that it constituent parts ( ie Asperger’s syndrome, Autistic Disorder, Childhood Disintegrative Disorder and Pervasive Developmental Disorder (Not Otherwise Specified)) have all been rolled in together?

(I was told one of the reasons in the UK was that the responsible local government bodies were trying to say that Asperger’s syndrome was not serious enough to warrant funding.)

Anyhow in the last few years there are been a further conversation in the autism community about nomenclature.

Should we call it Autism Spectrum Disorder (ASD) or Autism Spectrum Condition (ASC)?

What do you think?

Please take the poll and share your thoughts in the comments box below.

Many thanks in advance!

“Autistic Boy” – watch this brilliant film made by an 18 year old autistic highlighting the positives.




Autistic Boy - filmA couple of days ago we were asked by the BBC to share this brilliant new film entitled “Autistic Boy ” made by an 18 year old autistic.

Set in a small office in Birmingham this film documents the positive impact Asperger’s Syndrome brought into everyone’s lives!

Gerard writes “I’m Gerard Groves, I’m 18 years-old, and I love making stuff: films, comedy sketches, project ideas… Basically anything people can watch and enjoy or laugh at or learn from. I’ve been making films since I was a 12 year old kid dressed up as Doctor Who in my back garden; my dream is become a cross between Ridley Scott, J.J. Abrams, and Quentin Tarantino. I’ve just moved from Birmingham to London to start my new job as a BBC Production Apprentice I’d love to hear your feedback/support/criticism/plans-to-take¬-over-the-world!”

Please do share any comments you have about the film in the comments section below.


Life with Aspergers Syndrome, ADHD, Bipolar disorder and Irlen Syndrome- check out the videos of Tom Schofield


TomTheOne
TomTheOne
A few days ago Tom Schofield got in touch to tell us about his YouTube video channel The Tom One.

Tom shares “Hello everyone, I’m Tom and I’m a 26 year old man with Asperger’s Syndrome, ADHD, Bipolar disorder and Irlen Syndrome. I got my first diagnosis when I was five years old and that was ADHD after my primary school said I was too much of a wild child. A few years later at age 8, I was given a diagnosis of Asperger’s Syndrome and finally some accommodations were made for me at school.

At 21 I was dragged to the doctor by my then wife after experiencing extreme mood swings over a period of several months and he diagnosed me with bipolar disorder, then a few years later at 26, I saw a specialist optician after complaining about extreme light sensitivity that had plagued me my whole life, and it had started becoming worse. He told me that I had a form of vision disorder called Irlen Syndrome, a condition that is very common in autistic people, but not exclusive to us. It’s where your eyes function as usual (meaning you can have visual disorders and still have this) but your brain can’t perceive the visual input properly.



I made these videos because I wanted to help people understand autism a little better, and hopefully offer some insight into what it’s like to live with day in and day out. More videos will be done in the future, including some involving some of my friends, who are also autistic.”

He goes on “I made the videos because there was a lot of research done on autism, but hardly any of it was done by autistic people themselves, never mind portrayed it from a perspective that knew how it felt to be in these situations. I got tired of people misunderstanding behaviour from us as bad or strange, when they didn’t understand the reason. I also wanted to help parents understand their autistic children a little better.”

You can watch Tom’s videos which cover such topics as loneliness, eye contact and sensory overload by clicking on this link.