As you know at Patient Talk we are always very happy to help promote research into autism and ASD. A few days ago we were contacted by Elizabeth Hooks who is a doctoral intern studying School Psychology at Ball State University. Ms Hooks asked up to help her find parents of children on the spectrum to take part in a new project!
Hooks wrote “I am a doctoral intern studying school psychology at Ball State University and doing my internship at Kennedy Krieger. I was hoping you would be willing to post my dissertation recruitment flyer.
We are looking for kids with autism, ages 12-18, who have a 4th grade reading level. We are asking them to fill out a personality assessment form, which assesses for rates of anxiety and depression in neurotypical teens. We are hoping it can be used to accurately diagnose these conditions in teens with autism as well. We are offering a $15 itunes gift card and they will be entered into a raffle for 6 $100 visa gift cards.”
Liz Freeman Floyd, M.A., is a doctoral student in the School Psychology program at Ball State University. Her graduate training experience includes providing psychoeducational assessment and counseling therapy in both educational and clinical settings. Liz participated in the design and implementation of the Ball State Center for Autism Spectrum Disorder’s employment evaluation research study as a graduate research assistant and will intern with the Center during the upcoming academic year. Prior to entering graduate school, Liz served on the boards of directors of the national Autism Society, the Indiana Autism Coalition, and the Autism Society of Indiana. Following graduation she plans to provide assessment and counseling services to individuals and families living with autism spectrum disorder and other developmental differences.
Elizabeth Hooks, M.A., is a doctoral intern studying School Psychology at Ball State University. She is currently interning at the Pediatric Developmental Disorders Clinic and Neurobehavioral Outpatient Unit at the Kennedy Krieger Institute (KKI) and is working to gain licensure as a Board Certified Behavior Analyst at Ball State University as well. During her graduate training, Elizabeth gained experience working in several school districts throughout Indiana and worked as an early intervention specialist for children with Autism Spectrum Disorder and other developmental disabilities. Following graduation, Elizabeth plans on providing assessment and diagnostic services for families, and behavioral (ABA) therapy to families who have children and adolescents with developmental disabilities.
David E. McIntosh, Ph.D., is the David and Joanna Meeks Distinguished Professor of Special Education at Ball State University. The author of numerous scholarly publications, Dr. McIntosh is editor-in-chief of the peer-reviewed academic journal Psychology in the Schools. He was instrumental in the creation of Ball State’s Center for Autism Spectrum Disorder, an on-campus center founded to address critical gaps in services available to the autism community through research, training, and capacity-building activities. Dr. McIntosh’s research interests include the identification, assessment, and treatment of individuals on the autism spectrum. http://cms.bsu.edu/academics/collegesanddepartments/teachers/directory/deptofsped/mcintoshdavid
Strategies for dealing with fear and anxiety caused by a chronic medical condition.
I came across this fascinating infographic just now and felt I should share it with your all.
While it as written for people with multiple sclerosis but it is very suitable for other conditions such as diabetes, rheumatoid arthritis and fibromyalgia.
Do feel free to share with anyone you feel may be interested.
Any serious illness, especially painful ones, can make you tired. But some quite minor illnesses can also leave you feeling washed out. Here are 10 health conditions that are known to cause fatigue.
This is a type of food intolerance, where your body reacts badly when you eat gluten – a substance found in bread, cakes and cereals. One in 100 people in the UK are affected, but research suggests that up to 90% of them don’t know they have the condition, according to patient group Coeliac UK. Other symptoms of coeliac disease, apart from tiredness, are diarrhoea, anaemia and weight loss. Your GP can check if you have coeliac disease through a blood test.
Read more about coeliac disease.
One of the most common medical reasons for feeling constantly run down is iron deficiency anaemia. It affects around one in 20 men and post-menopausal women, but may be even more common in women who are still having periods.
Typically, you’ll feel you can’t be bothered to do anything, your muscles will feel heavy and you’ll get tired very quickly. Women with heavy periods and pregnant women are especially prone to anaemia.
Read more about iron deficiency anaemia.
Chronic fatigue syndrome (also called myalgic encephalomyelitis or ME) is a severe and disabling tiredness that goes on for at least six months. There are usually other symptoms, such as a sore throat, muscle or joint pain and headache.
Read more about chronic fatigue syndrome.
Sleep apnoea is a condition where your throat narrows or closes during sleep and repeatedly interrupts your breathing. This results in bad snoring and a drop in your blood’s oxygen levels. The difficulty in breathing means that you wake up often in the night, and feel exhausted the next day.
It’s most common in overweight, middle-aged men. Drinking alcohol and smoking makes it worse.
Read more about sleep apnoea.
An underactive thyroid gland means that you have too little thyroid hormone (thyroxine) in your body. This makes you feel tired. You’re also likely to put on weight and have aching muscles. It’s most common in women, and it happens more often as you get older.
Your GP can diagnose an underactive thyroid by taking a blood test.
Read more about having an underactive thyroid.
One of the main symptoms of diabetes, a long-term condition caused by too much sugar in the blood, is feeling very tired. The other key symptoms are feeling very thirsty, going to the toilet a lot and weight loss. Your GP can diagnose diabetes with a blood test.
Find your local diabetes support services.
Glandular fever is a common viral infection that causes fatigue, along with fever, sore throat and swollen glands. Most cases happen in teenagers and young adults. Symptoms usually clear up within four to six weeks, but the fatigue can linger for several more months.
Read more about glandular fever.
As well as making you feel very sad, depression can also make you feel drained of energy. It can stop you falling asleep or cause you to wake up early in the morning, which makes you feel more tired during the day.
Read more about depression.
This is when you get uncomfortable sensations in your legs, which keep you awake at night. You might have an overwhelming urge to keep moving your legs, a deep ache in your legs, or your legs might jerk spontaneously through the night. Whatever your symptoms, your sleep will be disrupted and of poor quality, so you’ll feel very tired throughout the day.
Read more about restless legs.
Feeling anxious is sometimes perfectly normal. However, some people have constant, uncontrollable feelings of anxiety, which are so strong they affect their daily life. Doctors call this generalised anxiety disorder (GAD). It affects around around one in 20 people in the UK. As well as feeling worried and irritable, people with GAD often feel tired.
Read more about anxiety.
Find your local anxiety support services.
This video may be of interest
I ask because as many of you know I am the England based father of a child on the autism spectrum. Like many younger people on the spectrum he suffers from anxiety. His school suggested that we ask for help from the local medical professionals.
This was supported by our son’s educational psychologist.
But when we can to take him to the local service provider we were told that because of his autism he would not qualify. Indeed the “bar was very high” for any child to gain support.
So I wondered how common our experience has been. Given that there has , in the UK at least, much noise about the need to open up the conversation about mental health. Which seems to me to be pretty pointless if you are not going to put in any resource.
So firstly I have set up the poll below asking “Is enough being done to help people with mental health conditions in your opinion?”. Firstly it would be great if you would take part.
Secondly would you tell us a bit more about your story about seeking support for a mental health issue. Please do use the comments box below to tell us more.