On one of PatientTalk.Org’s groups on Facebook called Multiple Sclerosis Talk (https://www.facebook.com/MultipleSclerosisTalk) the subject of diagnosis with MS and the road to that diagnosis is one of the most common topics discussed.
For example, a recent question on diagnosis showed that our members have widely different experiences in terms of length of time it takes to get a diagnosis. One reader shared:
“Oh it only took 7 years of fighting!”
On the other hand another said:
“For me it was pretty easy….symptoms, MRI, and lumbar puncture and it was done! I have a wonderful Neuro doc that sent me to a Neuro doc that specializes in MS. Nobody gave me the runaround.”
Concerningly another reader mentioned:
“My mum was told it was all in her head for a good while. Was so frustrating!!”
So in three short comments we can see that there is a wide range of issues and concerns for people getting diagnosed with multiple sclerosis. We thought that the best way of kick-starting a discussion would be to suggest a few questions. Please do feel free to contribute anything you feel is of interest to other readers.
- Firstly, how long did it take you to get diagnosed with multiple sclerosis from the first symptoms to the final diagnosis?
- Did you have an MRI or Lumbar Puncture for a final multiple sclerosis diagnosis? Can you describe the process and its effects?
- Did you feel supported and understood by the healthcare professionals around you during the diagnostic process?
- What were you concerns about multiple sclerosis prior to diagnosis?
- What advice would you want to give to a person in the process of being diagnosed with multiple sclerosis?
Thanks very much in advance and we look forward to reading your comments.