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31 comments
hughes812000
hughes812000

I have to ask a few question. I am doing a paper on autism. I was hoping someone would be able to answer these question.

Can you please compare and contrast Autism vs a normal development of a child with there peers?

How would they speak,act or problem solve differently based on what you may have seen in a typical day?

madlou
madlou

I was diagnosed in 2006. I take Low Dose Naltrexone and function very well. However, the latest round of MRIs shows an increase in the number of plaques on my brain. I have few symptoms in my upper body, primarily balance. I have neuropathy in my feet. Other than that even the neurologist said my MS appears to be benign. He wants me to consider taking a medication that would reduce the growing number of plaques. I have no idea which medications are best for what symptoms. Any suggestions?

Kitatlivingforacure
Kitatlivingforacure

@madlou I have been taking Protandim for 5 years. It's herbal and tested stronger than Tecfidera against MS. It gave me back my brain. Try it. lLso, are you eating an anti-inflammatory diet? No gluten, no soy, little dairy and so on. No potatoes unless cooked in a pressure cooker for at least 20 minutes. Areyou taking magnesium? Alpha lipoic acid? Have you considered medicinal mushrooms? 

madlou
madlou

@Kitatlivingforacure @madlou I've never heard of Protandim. I like that's it's herbal. I do well to avoid gluten, soy and dairy. And I don't eat much in the way of red meat. I've never heard that about potatoes. Will look into it. i usually eat sweet potatoes, not white. I do take magnesium. Thanks for the suggestions. I will do my research into all of them. 

thirdeye
thirdeye

we are running a special school for autism fallowing ABA THERAPY. WE WANT TO SHARE OUR DETAILS WITH YOU

BarbaraHinojosa
BarbaraHinojosa

UNCONDITIONAL LOVE story …… who are you to make a decision?

Yesterday as every morning we arrived to the daycare to leave Taigan .... and we saw that there was a bus and all classmates of Taigan were boarding the bus ... I saw her teacher and asked ... what was going on? (Nobody told me anything) She answered me: "Were going to see theater play “but I thought Taigan was not going to be interested in participating and would not understand what was happening""... Taigan is going to stay in the day care ...she said 
the only thing I could say at that time of confusion for me ...
was "the next time ask me if Taigan can go or not," and they went on the bus ...
(An immense sadness came over me) I take Taigan inside to the day care and I went ... ..
I started driving,, the tears took control of me, I felt like I had been ripped my soul ... I had never felt such pain in my,,, I realized that was not the mom as strong as I thought it was .... I call Taigan dad to tell what had happened ... and could barely speak .... 
Taigan Teacher killed for a moment all my hope that I have built with so much work since we got the diagnosis of Taigan,
with their desicion not to take Taigan with other children ... taking away the opportunity doing an activity and have a new experience.
Jim told me, now back to day care, grab your son and take it to the theater ¡!!!!!.... And I did ... thanks to jim ...i take my the tears and I was filled with strength and courage,
We their parents, are the people who fight for and we believe that our son can do more .... That what people think ... ..
Taigan and I went to the theater, he enjoy it, he was happy, he raised her hands when all the children raised their hands,
and he participate in activity in which some people thought that he was incompetent to participate …... but the incompetent was the teacher who decided not to take Taigan, she has no idea about our son, or autism and who has neither a piece of humanity and compasión….she did not have an idea of the challenge Taigan have in your life and that this type of activities they will help improve their social skills and with help, love, patience and acceptance ... Taïgan he can do!!!!! 
us by going there, we showed that if he can, he is able,
to be different not mean that it can not
It was a great lesson for all of us,
until the day yesterday none of this had happened to me,,,, but I think this is the first battle of many that await us ... fight for the rights of our children,,,,
but here we are
for him ….

Anonymommy
Anonymommy

can you please ask this on your Facebook page?

I'm the mom of a 13 year old boy who is Autistic. He has a speech disorder along with other diagnosis not relevant to this question. He's a really big boy, 5'8 and 160lbs.. He has recently started flushing things down the toilet. It started with Un-preferred foods and progressed to anything and everything. The plumber bills are piling up and the expense is higher than I can handle. He also has started breaking down locked doors within our home. Such as my bedroom door, in order to get to a TV, computer, or cell phone. I want to discourage these behaviours asap!! Any and all help is appreciated!

GabrielleLucido
GabrielleLucido

Can you please post this on your autism talk Facebook page?

Hello, I'm an autistic college student and I was wondering if anyone knows of any scholarships or grants I might be able to get.

Thanks!

LindseyMaitland
LindseyMaitland

Hi I'm a mom my son how's 3 is not talking in one or more words the what to test him but I feel it's not it there a hear loss on my side and my husband side of the family we going too have a ABR done too see

Sasmom57
Sasmom57

Has anyone been given Lyrica for Fibromyalgia? Can you tell me how it works for you? Have you had good results with it? I have a new pain specialist that has taken me off of the large amounts of medications the Neurologist has had me on and has put me on Lyrica. He said I will feel better and won't be taking a bucket load of medication each day. He has also sent me to a Rheumatologist. He said they will do more for me than Neurologist. I hope this works. I've been fighting this monster for over 20 years. A little bit of relief would be wonderful. Thank you.

ChrissyAnthonyMiller
ChrissyAnthonyMiller

there is a Facebook post showing a mantel with a beige puzzle piece that says "thank you for being a piece of my life and then has a puzzle piece heart in lower right corner. address gives a link to this site to order but cannot find.  Any suggestions.

DawnMcCann
DawnMcCann

I live in the United States, have not found one doctor that understands Hughes syndrome. Have had the blood work by a hematologist tested positive 5x for antiphosolipids, 4 times for sjrogens syndrome.  Went to a rheumatologist last week at the same hospital, he said you do not have sjrogens syndrome. When I told him I was having trouble walking up and down stairs, he pulled my fingers and asked me if it hurt. He did not persue it any further. I need a specialist in Massachuesetts, USA. 

EricStreightif
EricStreightif

Has anyone tried Lemtrada and if so, how have you done with it?

ArdethYvonneBannon
ArdethYvonneBannon

The word should be "whipped" as in "whipped out her photoshop" not "wiped" as in "they wiped down the table"

Kitatlivingforacure
Kitatlivingforacure

What idjits these doctors be! So sorry your daughter has such pain. Have you tried essential oil and perhaps ReMag?

sandratreacle
sandratreacle

I took my daughter now 16 years old for 3 years with back pain, to our Drs, they kept saying it was growing pains, they di not even look under her clothes to see her back or do xrays. Last year I measured her and found that her hip and shoulder blade were very much out of line. I took her back again to our drs and said, "I think she has Scoliosis, it was only then that they looked under her t-shirt and said "Oh, yes she has" we will get her seen by the specialist, by then she had a 63 degree curve in her spine and her spine was also twisting round. When she got to the hospital her curve was 83 degrees and needed surgery, On June 10th she had a 5 hr operation to repair her spine and now has 2 titanium rods with 11 bolts down her spine and is in a lot of pain. I blame our Drs for crippling my daughter.

Kitatlivingforacure
Kitatlivingforacure

Kids with allergies can react to life with irrational anger and angry behavior. It's not standard testing so find a  really good allergist. Use the physican finder here http://aaemonline.org/ 

It's going to be ok. You are enough as a parent. Have confidence in yourself and it will show to her.

jordaninger
jordaninger

I have a 3.5 year old daughter who is a lot bigger than most kids her age. We are having a lot of issues at home and her pre-k with biting and shoving other kids. Kids can be minding their own business and she will go up behind them and shove or bite. Today she bit her cousin and wouldn't  let go. It breaks my heart to see her acting this way and I don't know what to do. PLEASE HELP

Kitatlivingforacure
Kitatlivingforacure

Please if you are on Facebook, friend me and I'll add you to our support group there, Living for a Cure. Meanwhile, will email you.

bculp38
bculp38

Hello my name is Brenda Culp. I have been diagnosed with a Demyelinating Disease but they do not know what type it is. I was told by a specialist that it is not MS or Susac Syndrome. He has never seen anything like it before. None of the Neurologists I have seen in my area want to find out what type it is. This all started a year and a half ago and since then this thing has taken my ability to walk on my own. I am in a wheelchair now. Please is there anyway that you can help me? Please contact me at BCulp38@yahoo.com.

Kitatlivingforacure
Kitatlivingforacure

I admin a support group on facebook, Living for a Cure. Friend me there to join. It's mostly people with MS but we talk about it all and that way we can stay in touch.

TeresaMills
TeresaMills

Thank you thank you thank you 😁. I will be researching this an speaking with his doctor and therapist. I really really appreciate your advice.

TeresaMills
TeresaMills

Thank you so much for the information. I will be researching this as well as speaking with his and therapist. I really really appreciate your advice.

TeresaMills
TeresaMills

My son will be 10 soon and he is artistic refuses to eat any meat or vegetables. He will only let his diet consist of bacon, pancakes, syrup NO BUTTER, also chicken nuggets as long as it tastes like Wendy's, and cookies and simple sugars. I have tried the if you don't eat you can go to bed or take away things he likes and things like that. If he's tries things and starts to think about it he will throw up everywhere and I don't know what to do. His own autism doctor is out of ideas at this time. Does anyone else have any ideas? I have been thinking of trying to make a milkshake with a bit of steak in it and not saying anything until the next day. What are your thoughts? We need ideas please. Thank you in advance

Kitatlivingforacure
Kitatlivingforacure

@TeresaMills he's got food allergies. A picky eater is an allergic eater. It might not show up with standard testing though - go to the website www.aaemonline.org and use the physician finder to find the ebst allergist who will help you out. We did this with our son - they gave him oral vaccines, no shots, and in 2 weeks he had back almost all foods. Amazing! 

kingers
kingers

@TeresaMills If you think it is food allergies or food sensitivities then try York Test: http://www.yorktest.com/. My GP recommended them to me a few years ago and the results showed me what to avoid with instant results.

However, what I do with my autistic son who is a fussy eater (but thankfully likes quite a wide range including fresh, raw fruit and veg) is to make him a milkshake with ground up vitamin tablets in. He won't take any of the children's vitamin tablets normally but using a hand blender I mix up half a banana (he loves bananas) with some milk, teaspoon of sugar and a vitamin tablet.

I have to accept that being autistic there are certain battles I am not going to win with him! But, I do need to make sure he gets appropriate nutrition even if I can't get him to eat what we would normally think of a balanced diet. I don't mind him eating chips and roast potatoes so long as he doesn't get fat. I can get five-a-day into him by way of fresh fruit but I use the disguised vitamin and minerals milkshake to make sure the full range of vitamins and minerals gets into him.

JodyTompkins
JodyTompkins

I suffer from anxiety, depression with a tendency for suicidal thoughts ( I would never move forward with that though. I have 3 children and a husband) I was diagnosed in September of 2014 with temporal lobe seizures as well. I have severe financial issues such as going through a scam company to negotiate my credit card balances. I have been trying to adjust to medications since September, of course both the seizures and meds seem to effect my work performance and I ended up losing my job. The reasons were all ridiculous reasons. But all in all now, I find it extremely difficult to leave my house or speak with anyone by phone . I feel worthless like no one can understand. Do I have any recourse on what to do to help myself? My preference would be a job, but now I lack the confidence to even apply. I am. Almost 50 years old and have worked all my life, at times 2 jobs at once. I am teaching out in desperation.

Kitatlivingforacure
Kitatlivingforacure

@JodyTompkins start eating a non-inflammatory diet - it will make you feel so much better. Friend me on facebook to join our support group for chronic illness, often MS and fibro and depression and seizures, and I'll be glad to give you a file of how to eat and supplements to take. It can and will get better. Depression and suicidal thoughts are often triggered or made worse by what we eat, drink, and breathe. Lots have also been through the financial grief. You are never alone!

liloakraider4ever
liloakraider4ever

Fibromyalgia affects our daily lives, but don't let it take over your life. We must take one day at time. Stay strong and good luck in your journey. Keep yourself up to date on new research and treatments for fibromyalgia. I find staying connected with others who suffer from fibromyalgia helps me. Take care