Fibromyalgia – How long did it take you to get a diagnosis of fibromyalgia?

One of the first things I noticed about fibromyalgia was the time it seemed to take for a person to

Fibromyalgia
Fibromyalgia

get diagnosed.

We are there for running a poll to try and find out what was the general experience of our readers. The poll is below and it would be great if you could take part.

Please feel free to use the comments box below to share more about your fibromyalgia diagnosis story.  Hopefully other readers will be able to benefit from the knowledge you have picked up during your journey!

 


Managing Fibromyalgia and Chronic Pain Workshops! A guest post from Melody


Fibromyalgia workshops
Fibromyalgia workshops

This is a guest post from Melody of Only to Be.  Here she tells us about some Fibromyalgia and Chronic Pain workshops she is running

She writes

“Fibromyalgia and Chronic Pain can affect every part of your life; mind, body, and spirit. The treatments and approaches offered by the Medical Community, in most cases, are community based instead of individualized. Lacking and offering little hope of living a full and active life. The life you want.

 

These workshops were designed for you and what you face daily, by a woman, Melody who has personally experienced what Fibromyalgia and Chronic Pain can throw at you.

 

These workshops will explore obstacles, practical solutions, provide education and techniques that can reduce the symptoms you experience with Fibromyalgia/Chronic Pain.

 

WORKSHOP 1 – COMPARISONS AND DECISIONS

Holding on to who you were, should be or want to be can be stopping you. While looking at comparisons, we will also be looking at what your motivation is for the decisions you make.  You will walk out with new ways at looking at yourself and your relationship with your condition and how to make decisions that you are comfortable with and beneficial for YOU.

 

DATE: WEDNESDAY OCTOBER 30, 2013

TIME: 1:00PM TO 2:30PM (EST)

 

WORKSHOP 2 – ENERGY PART 1

Defining energy for Fibromyalgia and Chronic Pain, while exploring useable/good and bad energy.  You will learn how to identify your energy level and choose activities that will help instead of hinder you.

 

DATE: WEDNESDAY NOVEMBER 6, 2013

TIME: 1:00PM TO 2:30PM (EST)

 

WORKSHOP 3 – ENERGY PART 2

Stabilize your energy level, preventing highs, lows, and flare ups. Increase your energy level and the different methods to do this and supporting tools.

 

DATE: WEDNESDAY NOVEMBER 13, 2013

TIME: 1:00PM TO 2:30PM (EST)

 

WORKSHOP 4 – DIET VS. LIFESTYLE

Review the different diets targeting Fibromyalgia /Chronic pain, and foods that feed into Chronic Pain. Healthy choices over deprivation, while providing easy substitutions and realistic options.

 

DATE: WEDNESDAY NOVEMBER 20, 2013

TIME: 1:00PM TO 2:30PM (EST)

 

WORKSHOP 5 – SUPPORT & PERCEPTIONS

Addressing and releasing expectations and perceptions, yours/family and friends/societies. Putting in place a support system and plan that opens communication and adds to the foundation of your healing.

 

DATE: WEDNESDAY NOVEMBER 27, 2013

TIME: 1:00PM TO 2:30PM (EST)

 

 

 

WORKSHOP 6 – EXERCISE

Dispelling the myths and focusing on the importance of exercise. Customizing exercise for where you are and choosing the right form for you (will review the different types that are beneficial for Chronic Pain).

 

DATE: WEDNESDAY DECEMBER 4, 2013

TIME: 1:00PM TO 2:30PM (EST)

 

WORKSHOP 7 – THE UNDIAGNOSED

Addressing the misconceptions from those unfamiliar with Fibromyalgia/Chronic Pain. Learn how to educate, receive unwanted advice, and let go of frustrations. Will also review how to attend social events, and interact without your condition being a hindrance.

 

DATE: WEDNESDAY DECEMBER 11, 2013

TIME: 1:00PM TO 2:30PM (EST)

 

WORKSHOP 8 – MEDICAL VS. ALTERNATIVE MODALITIES

Learn about what is currently being offered by both sides, and the benefits and downfalls of each. We will review how to approach the medical and alternative communities, and what red flags to watch for, with an understanding that the decision is a personal choice.

 

DATE: TUESDAY DECEMBER 17, 2013

TIME: 1:00PM TO 2:30PM (EST)

 

WORKSHOP 9 – EMOTIONAL/SPIRITUAL

Addressing the emotional and spiritual toll that Fibromyalgia/Chronic Pain can take. Providing tools, methods that focus on reducing depression, anxiety, and other negativity you are experiencing.

 

DATE: WEDNESDAY DECEMBER 18, 2013

TIME: 1:00PM TO 2:30PM (EST)

 

IF UNABLE TO ATTEND THE EVENT AT THE “LIVE” TIME YOU WILL BE EMAILED A LINK TO LISTEN TO THE WORKSHOP AT YOUR CONVENIENCE. AFTER EACH WORKSHOP YOU WILL BE EMAILED WORKSHEETS, AND INFORMATION OF WHAT WILL BE COVERED IN THE WORKSHOP.

 

COST: $15/SESSION

$90 FOR ALL 9 WORKSHOP IF PAID IN FULL BEFORE THE START OF THE FIRST WORKSHOP.

IF FINANCES ARE A CONCERN PLEASE CONTACT ME.

(IF YOU PURCHASE ALL 9 WORKSHOPS YOU WILL RECEIVE 1 30MINUTE SESSION WITH MELODY AND EMAIL CORRESPONDENCE BETWEEN THE WORKSHOPS)

 

TO RESERVE YOUR SPOT PLEASE VISIT HTTP://ONLYTOBE.WORDPRESS.COM/UPCOMING-EVENTS/


Fibromyalgia – What are your main Fibro symptoms? #fibromyagia

Fibromyalgia
Fibromyalgia

Welcome to the latest in our series of blog post of fibromyalgia ( to see previous post please have a look at http://patienttalk.org/?tag=fibromyalgia) and in particular the symptoms of fibromyalgia.

Different people with fibro have , of course, different symptoms.  The objective of this blog post is to give our readers the opportunity to share their symptoms with others.  To achieve this we have set up a poll which we would love you to take part in.  You will find the poll below.

Please make use of the comments box below to share any aspect of your fibromyalgia journey which you think may be of use to others.

Thanks very much in advance


Fibromyalgia – what treatments do you use for your fibromyalgia? Take our poll

Fibromyalgia
Fibromyalgia
Fibromyalgia – what treatments do you use for your fibromyalgia? Take our poll.

If you have any comments on your medications please feel free share more information in the comments boxes below


Fibromyalgia. What were your early signs and symptoms of fibromyalgia?

Fibromyalgia
Fibromyalgia

Welcome to the latest in our series of fibromyalgia blogs where we explore your experiences of the early signs and symptoms of fibromyalgia.  You can see all our previous fibro blogs here – http://patienttalk.org/?tag=fibromyalgia.  Well worth it as there are some great fibro hints.

All of us are individuals who may suffer from the same medical conditions but in very different ways.  We hope that you will use this blog to share with our readers your fibro story.  In particular the early signs and symptoms of fibromyalgia.

For most people with fibromyalgia the key symptom is widespread and long term pain.  The effect on our lives can be debilitating.  People with fibro also may suffer from what is called Allodynia.  This is where a person feels pain from a source which normally would not provoke pain.  A good example of this would be a change in temperature or sometimes just even touch.  Nerve or neuropathic pain is also common.  Check out our previous blog on the subject – http://patienttalk.org/?p=281.

Common signs and symptoms of fibromyalgia can include:-

a)      Fatigue.  This in some cases can be extreme.  Please check out our previous blog about ways of fighting fatigue – http://patienttalk.org/?p=239

b)      Related to this is what is often described as “Fibro Fog”.  These are problems with both memory and concentration which lead to a sense of confusion.

c)       Irritable bowel syndrome.  Normally either diarrhea or constipation but sometimes  bloating as well.

d)      Sleeping issues which can include insomnia.  For more information please take a look at this blog http://patienttalk.org/?p=246.

e)      Depression and anxiety.

But, of course, fibromyalgia is a syndrome.  A syndrome could be described as a “constellation of symptoms”.  This means that each person with fibromyalgia experiences it in a unique way.

This is where you come in.  We would be very grateful if you could share your experiences of the signs and symptoms of fibro with other readers.  As always we are very interested in anything you have to share but you may find the following questions a good guide:-

1)      What was your first symptom of fibromyalgia?

2)      How long after it appeared did you get diagnosed with fibro?

3)      What sorts of pain do you experience with your fibromyalgia?

4)      What would you say is the worst symptom of fibro?

5)      How do you manage your symptoms?

Please feel free to add anything you think will be of use or interest in the comments box below.

Thanks very much in advance.