Eating disorders potentially hiding autism diagnosis

Anorexia and autism
Anorexia and autism


Young people with eating disorders may also have underlying and undiagnosed autism spectrum disorder, according to Flinders University researchers.

Led by Professor Robyn Young from the College of Education, Psychology and Social Work, a new study has set out to further understand the link between autism and problematic eating behaviour.

“Research has shown that eating disorders and autism may co-occur, with persons with eating disorders being referred for consideration of an autism diagnosis with increasing frequency,” says Professor Young.

“When we consider the behavioural characteristics of autism, such as being selective about food and textures, food refusal or being particular with the type or colour of the utensils used, it is plausible to suggest that these behaviours may eventually lead to an eating disorder.”

The researchers say that clinicians who may be primed to diagnose one condition, given the salience of particular behaviours, may miss the co-occurring condition.

“This could create an issue in terms of treatment. If in fact autism is the cause of the disordered eating and the autism is identified, intervention will need to be modified with this diagnosis in mind,” says Professor Young.

Published in the journal Advances in Neurodevelopmental Disorders, Professor Young and her team surveyed 74 autistic and 40 non-autistic young adults aged between 18 and 25 years on their eating behaviour to better understand the relationship between autism and eating disorders.

The study found autistic individuals self-reported higher levels of problematic eating behaviour than non-autistic individuals, and also reported higher weight and shape concerns. 

The authors say the latter finding was somewhat unexpected, suggesting that while autism may underpin the disordered eating in some cases, other behaviours more unique to anorexia, such as concerns around body image and shape, are also present.

“Our results suggest that autistic individuals are likely to experience autism-focused eating behaviours alongside, rather than instead of, typical eating disorder behaviours,” says Professor Young.

The researchers say what is needed is for the development of best-practice guidelines for the treatment of eating disorders among people on the autism spectrum, as no such guidelines currently exist, although further research will be required.

“We know that the presence of co-occurring autism and anorexia nervosa has been associated with poorer mental health and a poorer prognosis, which suggests that existing treatments for anorexia may need to be adapted in order to be effective among an autistic population,” says Professor Young.

“Further research is needed to identify and measure autism-driven eating behaviours so that guidelines for treatment can be developed to address the unique combination of symptoms in individuals with co-occurring autism and eating disorders.

“Health practitioners should be mindful that these conditions co-occur and consider both diagnosis prior to commencing treatment.”

Avoidant/Restrictive Food Intake Disorder | ARFID & Autism

Stephanie Bethany - YouTube


We’ve talked before about selective eating/picky eating and autism as well as same food, but we didn’t get into the real community that the term “safe food” is used for – those with ARFID or Avoidant/Restrictive Food Intake Disorder.



The social support for mothers of patients with eating disorders

Association between the social support for mothers of patients with eating disorders, maternal mental health, and patient symptomatic severity: A cross-sectional study

Anorexia and autism

Background: Although caregivers of patients with eating disorders usually experience a heavy caregiving burden, the effects of social support on caregivers of patients with eating disorders are unknown. This study aimed to investigate how social support for mothers who are caregivers of patients with an eating disorder improves the mothers’ mental status and, consequently, the symptoms and status of the patients.

Methods: Fifty-seven pairs of participants were recruited from four family self-help groups and one university hospital in Japan. Recruitment was conducted from July 2017 to August 2018. Mothers were evaluated for social support using the Japanese version of the Social Provisions Scale-10 item (SPS-10), self-efficacy using the General Self-Efficacy Scale, loneliness using the University of California, Los Angeles Loneliness Scale, listening attitude using the Active Listening Attitude Scale, family functioning using the Family Assessment Device, depression symptoms using the Beck Depression Inventory (Second Edition), and psychological distress using the Kessler Psychological Distress Scale. Patients were evaluated for self-esteem using the Rosenberg Self-Esteem Scale, assertion using the Youth Assertion Scale, and their symptoms using the Eating Disorder Inventory. We divided the mothers and patients into two groups based on the mean score of the SPS-10 of mothers and compared the status of mothers and patients between the high- and low-scoring groups.

Results: High social support for mothers of patients with eating disorders was significantly associated with lower scores for loneliness and depression of these mothers. We found no significant differences in any patient scores based on mothers’ level of social support.

Conclusions: For patients with eating disorders, social support for a caregiver cannot be expected to improve their symptoms, but it may help prevent caregiver depression and loneliness.


Anorexia nervosa: why do so many people in the autism community have eating disorders as well? What is your experience?




Anorexia and autism

Anorexia and autism




Anorexia nervosa: why do so many people in the autism community have eating disorders as well? What is your experience?

In this video Mair and William discuss anorexia nervosa in autistic people, how it presents and how to support autistic people with the disorder. The interview was filmed for Network Autism at the National Autistic Society Professional Conference in 2018.

Anorexia nervosa in autistic people: an interview with Mair Elliott and Dr William Mandy from National Autistic Society on Vimeo.




Bulimia – what are the signs and symptoms of bulimia?




Signs of bulimia

Signs of bulimia

The main signs of bulimia are binge eating and purging (ridding your body of food by making yourself vomit or taking laxatives).

There may also be psychological symptoms, such as:

an obsessive attitude towards food and eating

unrealistic opinions about body weight and shape

depression and anxiety

isolation – losing interest in other people

Without treatment, bulimia can lead to a number of physical complications. Read more about complications of bulimia.

Binge eating

Binge eating is repeatedly eating vast quantities of high-calorie food, without necessarily feeling hungry or needing to eat. The urge to eat can begin as an attempt to deal with emotional problems, but can quickly become obsessive and out of control.




Binge eating is usually a very quick process and you may feel physically uncomfortable afterwards. When binge eating is a symptom of bulimia, it happens regularly, not just once or twice.

Binge eating episodes are sometimes spontaneous, where you eat anything you can find. They can also be planned, where you make a shopping trip to buy foods specifically to binge on.

Read more information about binge eating.

Purging

Purging is a response to binging. After you have eaten lots of food in a short space of time, you may feel physically bloated and unattractive. You may also feel guilty, regretful and full of self-hatred.

However, the main impulse to purge is a powerful, overriding fear of putting on weight.

The most common methods of purging involve making yourself vomit or using laxatives to encourage your body to pass the food quickly.

Less common methods of purging include taking diet pills, over-exercising, extreme dieting, periods of starvation or taking illegal drugs, such as amphetamines.




Cycle of guilt

Bulimia is often a vicious circle. If you have the condition, it is likely that you have very low self-esteem. You may also think you are overweight, even though you may be at or near a normal weight for your height and build.

This may encourage you to set yourself strict rules about dieting, eating or exercising, which are very hard to maintain. If you fail to keep to these strict rules, you binge on the things that you have denied yourself. After feeling guilty about binging, you purge to get rid of the calories.