Parents of children with ADHD – can you help a student at Deakin University with some research?

ADHD Awareness
ADHD Awareness

We were contacted last week by Fiona Lynch of Deakin University who has us to help her find respondents for her research. So it would be great if you could give her a helping hand if you qualify.

Lynch writes “I am currently conducting a research project on hoarding behaviours in children and adolescents with and without ADHD that may interest you and some of your readers. I am currently seeking parents of 8-17 year olds with and without ADHD to take part in an important research project aimed at improving our understanding of the co-occurrence between ADHD and hoarding in children (e.g., clutter, difficulty discarding items, acquiring items). The project is examining the cognitive and familial factors associated with hoarding behaviours among children and adolescents. I am hoping if this project interests you, you may like to share it with your readers.

Parents can participate by completing a once-off online questionnaire about your child’s behaviours, taking approximately 20 minutes. If parents would like to take part in this exciting project, they can click the link below. Alternatively, they can contact the researchers directly to receive a mailed copy of the questionnaires or to discuss any questions they may have.

This project forms part of my Doctor of Psychology (Clinical) at Deakin University and is conducted under the supervision of Prof Jane McGillivray, Dr Richard Moulding, and Dr Linda Byrne. This project has been approved by Deakin Human Research Ethics Committee (approval # 2013-225).”

You can contact Ms Lynch at

Concern as one in five children experience near-misses in open water – this is useful information for parents of children with autism

Open water near Jaipur
Open water near Jaipur
• New research released today by the Amateur Swimming Association (ASA) shows that a fifth of children have experienced trouble in open water, with 40% of parents saying it was a serious incident
• ASA launches the biggest ever open water safety initiative Swim Safe for the third year running today
• The ASA is urging parents to make sure their children are proficient in open water situations and not to rely on others to ensure their children’s immediate safety

The Amateur Swimming Association and RNLI are today launching a new campaign to educate parents on the dangers of open water swimming. Despite the RNLI warning that swimming in temperature below 15 degrees celsius can seriously affect your breathing and movement, 26 per cent do not believe cold water would affect their child’s swimming ability.

Furthermore, although most fatalities occur in open water or in the sea the research reveals that nearly half (43%) of parents wrongly believe that if their child can swim in a pool they will be safe in the sea. More worryingly, one in eight parents admit that they don’t always supervise their children when they are in the sea or open water, even though one in seven parents say their child cannot swim (needs floats, doesn’t take their feet off the floor or can’t swim at all).

The ASA and RNLI are urging parents to take more responsibility for their children in open water and concerned that the message of the added dangers and difficulties of beach swimming are misunderstood by both parents and kids.

The push is part of the ASA’s annual Swim Safe programme which is a joint initiative between the organisation and the RNLI which aims to give children aged 7-14 years old visiting the coast an opportunity to understand and learn about the differences between swimming in a pool and the challenges of swimming in an open water environment

Report On Stillbirth and Neonatal Death Rates – UK performs poorly says Professor Elizabeth Draper. The poor and people from minority ethnic groups at particular risk.

Calling 911
Calling 911
A UK research team finds regional variations even after allowing for factors such as poverty, mother’s age and ethnicity.

Sadly almost 1 in 150 babies born in the UK is stillborn or dies soon after birth. A research team led from the University of Leicester has identified large differences across the UK in the numbers and rates of babies who die, even after taking account of known factors that influence the rate of death such as poverty, mother’s age and ethnicity.

A new report by MBRRACE-UK, has looked behind these figures to try and identify how the situation might be improved. The team has collected data for the 3,286 stillbirths and 1,436 deaths in the first 4 weeks after birth (neonatal deaths) of babies born at 24 weeks of gestation or more resulting from the 781,929 births in the UK and Crown Dependencies in 2013.

Key findings include:-

Pregnancies to women living in areas with the highest levels of poverty in the UK are over 50% more likely to end in stillbirth or neonatal death.
Babies of Black or Black British and Asian or Asian British ethnicity had the highest risk death with rates of 9.8 and 8.8 per 1000 total births respectively.

Professor Elizabeth Draper, Professor of Perinatal and Paediatric Epidemiology at the University of Leicester said: “This report confirms that the UK performs poorly compared to other European countries of similar economic status particularly Sweden and Norway. We recommend that NHS organisations across the UK and the relevant Royal Colleges establish national aspirational targets for stillbirth, neonatal deaths and extended perinatal deaths. This will enable all services to be assessed against this benchmark in the future in order to work towards achieving similar rates to those of the current best performing countries in Europe.”

In identifying what actions should be taken, Professor David Field, Professor of Neonatal Medicine at the University of Leicester and Consultant Neonatologist at Leicester’s Hospitals, stated: “Those parts of the UK shown to have the highest number of baby deaths will need to carry out thorough reviews to try and identify factors that may account for their high rates particularly those that may be amenable to intervention in the short term.”

Life Study – a new research project to understand the lives and health of children announced!

Life Study - Research into childhood health
Life Study – Research into childhood health
Life Study, a research study which aims to understand and improve the lives of children and their families, has announced its that Leicester’s Hospitals which will host the next Life Study Centre. Read up more here.

Life Study is an internationally leading research study that will involve up to 80,000 babies born between 2014 and 2018 and their families across the UK. Life Study was happy to announce that Leicester will be the next and 2nd city to host Life Study. Life Study will provide insights into the health and wellbeing of children as well as making contributions to the health of children in the UK. The information collected will be used to support research and policies aimed at giving children the best possible start in life.

A big focus of the project is to develop a good picture of children’s lives in the UK today. Children from families of different ethnic and cultural groups have previously been underrepresented in earlier research studies which look at children. So it is vital they are included to ensure accurate research.

Professor Carol Dezateux, Scientific Director of Life Study said: “Life Study will help Leicester understand how to tackle key issues relevant to its children’s health and well-being. By working in partnership with Leicester’s Hospitals, Life Study will support research into children and families from an ethnically and socially diverse community.”

“The public health and policy priorities for child health in Leicester are closely aligned to those of Life Study. The information collected will help research into the childhood origins of important health problems such as obesity and diabetes and ultimately to inform future policies and healthcare services that meet local population needs.”

The first Life Study Centre, at King George Hospital in Ilford, was officially opened in March 2015 by actress, comedian and screenwriter Meera Syal who said “The wonderful thing about Life Study is that they are following so many families over such a long period, meaning we have a chance to answer some of those big questions about environment, genetic triggers and upbringing.”

Pregnant women planning to give birth at Leicester Royal Infirmary or Leicester General Hospital (LGH) and their partners will be invited to join Life Study and to come to the new Life Study Centre at LGH in the second half of their pregnancy, and again when their baby is 6 and 12 months old. Recruitment to the study will begin in summer 2015 and appointments will take place from September 2015.

“A large study like Life Study will bring funding into Leicester’s Hospitals over the duration of the study. To ensure that we are ready to start delivering the study as soon as possible, we and the Life Study have invested over one million pounds for facilities, equipment and staff. Life Study will be bringing around 20 new posts to Leicester’s Hospitals which include research midwives, research healthcare assistants and others. We are working hard to ensure that there is a dedicated Life Study Centre at Leicester General Hospital, with all the necessary staff ready to recruit the first study participants. We are very excited about this project and look forward to the launch later in the year.” said Professor Nigel Brunskill, Director of Research and Innovation at Leicester’s Hospitals and Professor of Renal Medicine at the University of Leicester

4 Essential Water Safety Tips for Parents of Kids with Disabilities – a guest post from Patricia Sarmiento

Every child should get to experience the joy of swimming. It’s an excellent

4 Essential Water Safety Tips for Parents of Kids with Disabilities
4 Essential Water Safety Tips for Parents of Kids with Disabilities

physical activity with proven mental health benefits as well. While every parent should educate their child on water safety, parents of children with disabilities must take extra precautions.

I recently read a statistic from the National Autism Association that drowning is a leading cause of death for autistic children. That was startling, and it got me thinking about what precautions my neighbors and I should be taking to help protect the children with special needs in our neighborhood this summer.

So, where to start? First, I wanted to educate myself about general water safety. I recommend this overview resource on swimming safety for all parents. It touches on a wide variety of topics related to water safety. Then, I did some research to try and figure out the biggest areas of concern for children with disabilities. Here are a few essential tips:

Look for an adaptive life jacket. This great video from Safe Kids Worldwide is full of tips and addresses the needs of children with different types of disabilities. Its information on the importance of finding the right adaptive life jacket for your child is especially helpful.

Always be within arm’s reach. Danger in the water can pop up for any child in a heartbeat. Because some children’s disabilities may prevent them from protecting themselves, as May Institute notes, a parent or caregiver should always be close by when they’re in or around the water, even when the child is wearing a life vest.

Know what to look for in a swim program. As points out, swimming has many physical and cognitive benefits for children with disabilities. The article also explains how to take advantage of those benefits by finding a swim class that works for your child. It recommends looking for small classes with an experienced, trained leader.

Double check barriers. Pool fences are an important way to protect all children. Neapolitan Family Magazine suggests taking it a step further and using an alarm system that will alert you when someone has breached the area.

Time in the water can be extremely beneficial and enjoyable for children with disabilities. By following these tips, parents can feel confident in taking their child for a swim and everyone can truly enjoy the summer.

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Patricia Sarmiento is a health and fitness buff. She loves blogging about health, wellness, fitness, and other health-related topics. A former high school and college athlete, she makes living an active lifestyle a goal for her and her family. She lives with her husband, two children, and their shih tzu in Maryland.