World Lupus Day – like and share this graphic to show your support for Lupus and other autoimmune conditions!


World Lupus Day
World Lupus Day

Saturday 10th May 2014 is World Lupus Day. We have produced a graphic to help raise awareness of Lupus. It would be great if you could like and share.

To find out a bit more about Lupus check out our previous blog on the subject.

You can find the World Lupus Day web site here.

Thanks very much in advance.


World Fibromyalgia Day 2014 – please like and share this image to raise awareness of fibromyalgia


World Fibromyalgia Day
World Fibromyalgia Day

May 12th is World Fibromyalgia Day. Please like and share this FaceBook cover to help us raise awareness of fibromyalgia across the globe.

For more information please check out this FaceBook page on the subject.


Sjögren’s Syndrome Awareness Month – April is Sjögren’s Syndrome Awareness Month


This month is Sjögren’s Syndrome Awareness Month.

Sjögren’s Syndrome is an autoimmune condition which affects around 1% of the population.  You can find out more about it’s signs and symptoms at our previous post – http://patienttalk.org/tag/symptoms-of-sjogrens-syndrome/.

Indeed many people have only heard of it because Venus Williams suffers from Sjögren’s Syndrome.

To show our support for Sjögren’s Syndrome Awareness Month and to help raise awareness for the month we have produce the picture below.  It would be great if you could like and share it to help us promote Sjögren’s Syndrome Awareness Month.

Sjögren’s Syndrome Awareness Month
Sjögren’s Syndrome Awareness Month


Autoimmune conditions! How many auto-immune conditions have you been diagnosed with?

Autoimmune disease awareness
Autoimmune disease awareness

Having worked in healthcare for nearly ten years (first as a research now as a blogger) I have always been interested in what we can call the diagnostic profile of people with autoimmune conditions.

To get an overall introduction to autoimmune conditions please check out this article – http://patienttalk.org/autoimmunity-what-actually-is-an-autoimmune-medical-condition/.

One of the areas that interested me was that there does seem a strong pattern of people who have one autoimmune condition such as fibromyalgia developing another like lupus or rheumatoid arthritis.

I think it is worth quantifying this further so I am running a short poll to find out how many different autoimmune conditions each of our readers have been diagnosed with.

It would be great if you could use the comments box to share which autoimmune condition these are!  Many thanks in advance.


Sjogren’s Syndrome – what are the early signs and symptoms of Sjogren’s Syndrome? Share your Sjogren’s Syndrome story!

Sjogren’s Syndrome
Sjogren’s Syndrome
Welcome to the latest in our series of informational blog posts which look at different medical conditions

Today I’d like to focus on a condition called Sjogren’s syndrome.I first came across it a number of years ago when it was widely reported that Venus Williams, the Wimbledon winning tennis player, suffered from the condition.

So what actually is Sjogren’s syndrome?  It is an autoimmune condition whereby the body’s immune system attacks those glands which can produce fluids.  Examples of this include the saliva and tear glands.

It is worth noting that doctors see two types of Sjogren’s syndrome.  Primary Sjogren’s syndrome when it is a “stand alone“ condition.  And secondary Sjogren’s syndrome where it is combined with another autoimmune condition such as Lupus.

The condition is very common – with around 3% of us suffering from Sjogren’s syndrome.  Interestingly 90% of people with Sjogren’s syndrome are women.

The main symptoms of Sjogren’s syndrome are:-

a)      Brain fog – and general cognitive issues.

b)      Sinusitis and nose bleeds.

c)      Dry mouth.

d)     Tooth decay.

e)      Difficulty chewing and swallowing.

f)      Nerve pain especially in the limbs.

g)      Dry eye.  Eye infections are also common.

h)      Vaginal dryness in women.

i)      Gastrointestinal problems.

j)       Bronchitis and pneumonia.

It you are in any way concerned about these symptoms and how they apply to you, it is vital you see your Doctor as soon as possible.

We are also very interested to hear from people who have suffered from Sjogren’s syndrome.  It would be great if you could use the comments box below to share a bit more about your Sjogren’s syndrome journey.  It might be useful for you to consider the following questions-

1)      How long ago were you diagnosed with Sjogren’s syndrome?

2)      What were your original symptoms?

3)      How difficult was it to get a diagnosis of Sjogren’s syndrome? What tests were used?

4)      What treatments have you received for Sjogren’s syndrome?  How effective were these treatments?

5)      What one piece of advice would you give to somebody who has just been diagnosed with Sjogren’s syndrome?

Obviously we are interested in anything you have to say so these questions are really only a guide.  Feel free to add any links you think will be of interest as well.

 

Many thanks in advance.